Hi there! My name is Diane. I have been monitoring this blog for about six months and being continually impressed by the diligence to gather information and the positive way you support each other. I finally have an official diagnosis so I wanted to “officially” say hello and thanks for making the beginning of this journey a little bit less scary. I have Bradykinesic Form Parkinson’s Disease.
If you have any suggestions for me I would be most grateful. I know John Pepper suggests fast walking (Great idea! Hope I can soon!), but I am currently nursing a bad back. I participate in water aerobics 3 times a week.
Anyway, I very much look forward to interacting with all of you more closely.
Best wishes for a pleasant evening.
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justhavefun2
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Just curious when you say "bradykinesic form" does this mean you don't have tremor as a dominant symptom? I am also young onset, was dx'd at 39 with symptoms recognized since early 30s. I primarily suffer with imbalance and gait disturbance (PIGD).
That was my official diagnosis from the movement specialist on Tuesday. I don’t have a tremor, I also don’t have any swing in my right arm. I limp on my right side. I also have micrographia. My typing speed has decreased from 100 wpm to, likely, 50 to 60 wpm. I just started meds yesterday and I am looking forward to better days ahead. I am 57... Currently I am experiencing severe back pain. I am anxious to get that fixed so I will be able to step up my game at the gym!
How many years since you were diagnosed? Do you work? Any advice is so very welcome.
Hi ion_ion! Thanks for asking!Symptoms likely began about two years ago and I am taking cardopa-lopa (my funny name for sinemet or however you say or spell it)! I am taking 1 tablet in the morning with a “goal“ to be up to 8 tablets in 2 months. I hope to get away with less medication, but we’ll have to wait and see...
I have symptoms for about 2 years even I think it started earlier than that. I do not take any medication yet even the doctor prescribed 3 25/100 c/l per day. I have a slight tremor in RH and a little freezing on right side (leg and hand) which get down after exercising. So you take one pill per day and have to get to 8 per day? Do the med helps you feel normal, like before?
I was dx about 11 years ago and I had dbs 5 years ago. No longer working. Best advice?? Keep a positive attitude and stay active. Don't let the difficult days bully you into submission!
Hi ion ion! I was just diagnosed 2-13-18 and started medication yesterday, so it is too early to tell. I did a trial of Sinemet last summer (1 tablet 3x a day) with no effect. The docs are hoping that ramping up to 2 tablets 4x a day will be helpful. How about you? Please tell me about your diagnosis and meds?
I wanted a firm diagnosis before the doctor started to mess with my brain chemistry. I am hopeful that it will help. Where are you from? I “hear” an accent in your typing! 😎
good afternoon darlin,im john..well if you have a bad back forget the fast walking the swimming is better but a good walk every day,maybe 5 kl.just be carful of your back,i have a massage machine they are good and cheap,they help counteract the shaking in the arms and leg ill send you a video if you want,regards john
Hi there Diane, I've only been here five seconds myself, in the grand scheme of things, but it's always good to say hello to someone who wants to say hello too.
So hello Diane.
I've already learned a lot from the brief exposure to the site that I've had. I think you've come to a good spot for thinking through issues and maybe solving some problems as well.
Welcome, Diane! Actually, I get most of my support from this blog, because only people who have PD, and can share their experiences, seem to fully understand the implications of what it really feels like to actually go through the daily struggles. This is especially true, once PD symptoms have advanced from a mild stage to a more debilitating stage, where, nearly every day one has a struggle of one sort or another. So, anyway, I have gleaned wonderful information about PD and living and adjusting and what medicines work well etc., by interreacting with others in this forum. Many positive ideas have come from this. I’m sure you will, also, find this to be a valuable resource for you, in your journey of “life as a Parkie”. We are here to help and support each other!😀
Hi any intensive exercise will slow down the progression. As yiu have mentioned, John Pepper’s fast walking, rock steady boxing, intensive exercise bicycling, dancing etc are all beneficial. My bradykinesia improved with Rock Steady Boxing. Adding Sinemet will also improve your bradykinesia.
Thanks Charles! I love to exercise, so PD gives me an excuse to indulge more time bring active. I also love pizza...need to change my eating habits...easier said than done! Thanks for your great advice!
Welcome to the PD forum.Stay active, be positive, eat organic and plant based foods , do cycling ,swimming and Yoga if you can and enjoy your life. Share your thoughts and ideas here.
Water aerobics is excellent for many people with PD, according to medical professionals I’ve talked to and my own experience has proven it to be a fact.
Hi Diane, welcome , I only arrived here in the past six months and have found it full of helpfull words born of trial and error, iv just started on requip a month ago ( reluctantly)
I started Sinemet last week, but I had a bad reaction to it. My brain blanked out for a bit, so I am doing some NUCCA chiropractic to start and want to go the wholistic route and see where that takes me.
Hi I’m not sure weather it’s the Gyro Kinetics or the requip but I have been moveing a little more freely when not stressed , I gave myself a year of natural therapy only but it was affecting my work (I’m 56 so can’t retire yet) still committed to natural healing tho! Best wishes
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