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Parkinson's Movement
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Talk about Doom and Gloom!

I was just ferreting around Janice Hadlock Walton's PD Recovery site. Blimey, talk about damnation! The site declares that the organisation refuses to consider anybody as a 'patient' who's taken the slightest amount of Levadopa for more than 3 weeks as essentially this small ingestion buggers their brain up irrefutably and the protocol they offer never works effectively on such people. I wasn't actually considering joining up but I feel quite 'tainted' by this strong standpoint. Does anybody have any insights into the rationale of this declaration and/or disagree with their opinion? There do seem to be some cases of PWP who had the disease and went on levodopa, only to successfully turn things around, so I guess that JHW can't be right (Bianca Molle, John Coleman), but I feel disturbed by the declaration.

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She has that very severe warning, never explains it very clearly. Except that you can be left high and dry without being able to use levodopa in the future.. Did you get that same understanding?

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Yes I think so. I didn't read it that closely but was mildly irritated at such a negative message. It also struck me as being a little pompous in its tone.

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She is not to be taken seriously. Last March I experienced a rapid improvement my condition. I dropped my levodopa dosage by two thirds without any problem whatsoever. I experimented with no levodopa at all and only experienced annoying tremor, but none of the dire problems she alleges.

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What caused the rapid improvement?

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Qigong, It takes a lot of dedication and there are no guarantees. That said, it is working for me. My story here: healthunlocked.com/parkinso...

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Thank you anyway for the reminder.

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I practiced it for three hours a day under the direction of Bianca for eighteen months, but achieved no progress sadly. Exercise, on the other hand, has helped. I wish you continued success to complete recovery.

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Thank you for posting an evenhanded account of your experience. I am sure I would be very frustrated to have no improvement after all that effort.

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Park Bear, I know I ought to know this as I read many of your posts but can you briefly describe how you dropped the Levadopa by such a large amount? Thanks

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See my reply to Astra just above. Also, for me to be notified of your replies, please use the reply button instead of posting anew.

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Hooray for the placebo effect.

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JW-H has not the slightest idea of what a scientific approach is.

She is purely intuitive and pretty good at that. I definitely admire certain insights she has and I am grateful to her for the psychological side - and maybe ultimate - explanation of PD. Not to mention that she did all that for free.

But I do not buy into the needles, the energy flows, and all this imaginery stuff. Pure placebo, I agree with parkie13.

PS : If you want to stop L-Dopa or Dopamine agonists, I'm sure it's safer to do it *very* gradually. Google "Dopamine Agonists Withdrawal Syndrome" (DAWS).

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You can also Google malignant neuroleptic syndrome.

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Exactly.

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She has no credibility whatsoever. She's an acupuncturist with a 'degree' from some bs school of Chinese medicine.

All PD caused by 'backward flowing qi', and can be fixed by a change in attitude. What a patronising pile of crap. It infuriates me.

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LOL ! That's a pretty straightforward analysis !

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Sorry. Not my usual positive self at the moment. Floored by a cold and chest infection.

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You gave me my first smile of the day. Hope you get well soon.

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Thanks gang. You’ve perked me up!

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What are we supposed to do become cripples with sticks and wheelchairs

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According to her yes.

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No thanks not for me would rather stay fighting this horrid disease

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JHW's PD Recovery programme seems to neatly rule out anyone who has definitely got PD.

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I think her experience and point of view, minus the no meds part, is interesting. There are many approaches, many experiences, many points of view that can be useful in understanding and working on healing our condition. No one has the whole truth. Western science and medicine isn't the be all, end all but can be very helpful, as can Chinese medicine and other paradigms. I just finished a workshop for people with PD and Dystonia led by Joaquin Farias, who has a unique approach and, I think, profound insight into biomechanics and brain function. I'm very excited about what I learned and saw in the workshop. You can find out more on his website. He's deveoping a program for Parkinson's as he's primarily worked with people with Dystonia until now. He has extensive knowledge of biomechanics, neuropsychology, martal arts/qigong and chinese medicine. There will be more online resources available in the future. I think deeper insights and potential for healing will come from finding the connections and intersections between these different paradigms. I'm feeling very hopeful.

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Thanks. A lovely post😊

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read her book Once Upon a Pill...free download on her site. it is not arrogant or pompous or negative. it is simply based on what she has experienced.

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