Etc., etc

I should have asked this as part of my previous question. A lot of money has been raised for trial studies. From what I have read, many are never completed because they do not have enough volunteers or because people drop out.

This is just a thought, again, based on personal experience. I believe many do not volunteer for trial studies because they do not have transportation to go where the study is being done and also, there is so much upheaval in their lives that they just cannot participate in a study.

I would like to see a foundation that gave "grants" to newly diagnosed folks who are in the same situation that many of us find ourselves. A foundation that would bridge the financial gap between the time of diagnosis or inability to work until disability is approved. In my own case, I know that my financial situation significantly affects my symptoms.

I also cannot access medical care because I cannot afford to see the doctors or have test run.

Maybe something like this is already out there and I just do not know about it. If you have knowledge of such, please share.

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  • I know that there is an organization called Melvin Weinstein Parkinson's Foundation that helps people with Parkinson's that are having financial problems.I know that they provide walkers,chairs,etc., but I don't know if they will pay for doctor visits. It doesn't hurt to ask. Their phone # is 757- 313- 9729 or you can google mwpf.org or help@mwpf.org. I pray this will help you.

  • MaryAlice,

    Thank you so much for the information. A friend of mine gave me her deceased Mother's walker and cane. I have been doing well the last few months and have not had to use them. Right now, money stands in the way of getting the medical care I need. I will follow up on your suggestions. Thanks again, Susie

  • You're welcome. Good luck.

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