Low dose Naltrexone was introduced to me by one of the wisest ladies I know.
Bolt, it is my hope sharing this will be a small way of reciprocating the things you have introduced to me. I think it will be of interest to you. Or maybe you already take it? I haven’t had time to read today but am posting videos I found to be good.
Now my quandary is how to get it.
Compounding pharmacy:
Have a lovely spring weekend everybody! 🌷
Thank you so much CC! I will definitely watch these.
I am in an LDN group on FB: facebook.com/groups/LDNRT
I might join a couple more LDN groups. They have a couple specific to HT.
Thanks again!
I’m happy but bummed Bolt! I’m of course glad you know of it but was hoping to share something new. I’ll keep trying! 😂. Have a great weekend!
You have showed me plenty of new things. And more importantly, these reminders to circle back are invaluable. That is how my attention turned back to Methylene Blue.
Have a great weekend.
Are you taking LDN? If so dose?
I am not taking LDN.
My husband is taking LDN but we do not know if it is beneficial because how do you tell if it is the thing that helps or some of the supplements.
Yes. My husband has taken LDN for years, but saw a big improvement when he added thiamine therapy. And he does take a few other supplements as well as following Ray Peat's advice (somewhat).
hi - did your husband take b1 after being on LDN? Does he have PD? What kind of symptom improvement did he experience? Thanks in advance for your help. My doc wants to start me on LDN but I’m hearing so much about b1. Would love to do both.
Yes, he took LDN for years before we found he had PD.
The LDN may have lessoned some symptoms. He said he felt better using it.
He began B1 in July 2020. I can't find my old notes about his symptoms but swallowing pills improved immediately with B1.. His nighttime drooling improved. He still drools at night though (just less)
He doesn't have a severe case so that may be due to the LDN and B1. He also walks every morning which helps.
thank you! So happy to hear he did well on it. I just started B1 but my doc wants to start me on LDN. My symptoms are mild so far. I was just diagnosed but I’m young (49) and it’s scary. I want to do the best I can do and this is great news. Glad there’s alternative therapies right now to try. Take care and thank you.
Are there compounding pharmacies where you live?
You can easily dissolve a 50mg pill in 50ml of distilled water, and take 1ml of that solution equivalent to 1mg intake while keeping the rest in the refrigerator. No need for an expensive compounding pharmacy route and those pills will end up full of fillers. If you can manage to get a prescription, one 50mg pill should be as cheap as around one dollar.
I've been using LDN for maybe 20 years for fibromyalgia. My husband started using it after I did, but before we knew of his PD.
What's your ideal dosage?
For others - most start with 0.5mg-1.5mg and titrate up to 2.5mg or up to 4.5mg/day, often dialing back to a lower dosage.
so are you finding it helpful?
Yes. I got big improvement especially in recovery from musculoskeletal injuries. With FMS I would injure say a knee and it would take 6 months to heal up. After LDN, I was finding the healing would be more like a week or two for the same sort of injury. Closer to normal for these slight injuries.
My husband said he felt better but I forget the specifics. And I wanted to correct the timing. I'm not sure what year we started the LDN. If I run into my notes I'll fix that.
Would very much like your details so I can explain them to my physician, otherwise he might not want to try it on a patient's vauge suggestion only. Thanks if you will do that. Or better if you call your prescriber and get them to say their reasons and recommended dose etc. so I can pass that along. He'll listen to a colleague much more than just a patient, because a doctor will automatically things another would need to know that he wouldn't necessarily credit from just a patient...especially when he presses for the whys what-fors and wherefores. Ask if you can get the explanation as if it was to a colleague as well as for a patient. That would be a great help. They are naturally this cautious and skeptical about any new ideas that comes through a patient.
Here is a link to David Gluck MD and the LDN Research that might help:
lowdosenaltrexone.org/hx/ed...
At that website, different patients describe their experience and dosages.
I'm not on Facebook but I used to be a member of an LDN group there. They describe their protocols and experiences with doctors. Really helpful.
Thanks, it has to be your direct experience. I don't do FB because it is not secure. And MDs don't consider third hand testimonials...and I didn't either when I was practicing psychology. Only first hand experiences of a patient in a group like this based on your own experience notes...and the input or availability of an actual legitimized colleague the doctor can call to eliminate intermediaries and ask actual followup questions of the source. They are careful for good reason and in an unusual application that's what it sort of takes. So there are no real shortcuts to professionals when they are responsible for patient welfare from what they do. My doc will listen to reason, but his idea of reason is "my time is really limited, so if it sounds hinky or the source isn't really something to attract me, I won't even start, people are always handing me stories and I don't have the time, if you know of a practitioner and patient with specifics who did this and a patient not too far from your condition, that I can look into. But that's the bar. "
He's a great doc so I play ball his way. As Sydney75 just said below, "it's hard to find MDs to prescribe" and that is why, they need good info without any holes that welfare can slip through. He's funny though, last time I mentioned a certain vitamin he said "I went to school already and still owe $200,000 with 2 in college, CEUs, and you want me to chase down what might be a red herring for free? Throw some of your effort into the pot to help. Now is this worth that, or not? Maybe you'll get a finder's fee." To which I asked him if I could get that in advance if I had to listen to his jokes. You can tell we've been together a while.
Thanks for info. It is difficult to find MD to prescribe, found 2 about 40 miles away they are MDs who specialize in complementary medicine. The benefits are well documented but most MDs are not prescribing.
Maybe a naturopath would prescribe it.
lowdosenaltrexone.org/hx/bb...
Bernard Bihari, MD, was the discoverer of the clinical effects of LDN in humans. In his groundbreaking clinical trial of patients with HIV/AIDS at Downstate Medical Center in 1985-86, Bihari discovered the significant effectiveness of low dose naltrexone in protecting the battered immune systems of those who were infected. With that knowledge, he entered private practice in an attempt to counter the then untreatable disease.
LDN for Parkinson's treatment
More can be searched on Youtube.
Fascinating. Now looking it to how one can acquire it.
Chronic Diarrhea or Colitis and Parkinson’s
Cure your PD in 8 ½ minutes with a plastic cup!
Parkinson's Disease A Strange Gift
