Parkinson's Disease Symptom Progression - Parkinson's Movement

Parkinson's Movement

18,095 members18,291 posts

Parkinson's Disease Symptom Progression

Ianfrizell
Ianfrizell

Hi all

This is a link to my vlog about Parkinson's Disease Symptom Progression - from my very first symptom through to current day, post DBS.

youtube.com/watch?v=2marj7u...

Cheers,

Ian

19 Replies
oldestnewest

Thank you, Ian. This vlog left me feeling very sad, because it is such a tough row we hoe with this disease. I know there are much worse things, I just had a friend diagnosed with pancreatic cancer and lost another friend to this disease 5 years ago, but that doesn't change the fact that those of us with PD face extraordinary challenges on a daily basis. This disease certainly calls on the finer things in our natures. Thank you for your contribution!

Ianfrizell
Ianfrizell in reply to Enidah

My apologies, it wasn't intended to be sad - just a "warts 'n' all" account. As you say, there are many things worse to have and I count myself lucky that it's "only" PD.

Cheers,

Ian

AmyLindy
AmyLindy in reply to Ianfrizell

I appreciate Warts and All, Ian. Keep it coming - please! We need you. You have so much experience and knowledge. Thank you for all you are doing for our community. Maybe ...

You should have a "DONATE HERE" button to keep your "Broadcast" Alive- I'd surely pay. You're information is VALUED.

Ianfrizell
Ianfrizell in reply to AmyLindy

Thank you, AmyLindy, your comments are much appreciated. If my videos are useful, then that is payment in itself, but sharing links to my videos on Facebook and other social media helps to get awareness of the work that I am doing, so if you could share them, then that would be amazing!

Cheers,

Ian

Another useful informative vlog Ian, thanks. Poignant in parts but ultimately the story of a man who refuses to give in. Keep up the good work - you're looking great!

Thank you!

Your story of living with PD sounds just like the way everything unfolded for me, which resulted in PD diagnosis. I have not requested deep brain stimulation, at this point. Perhaps I will. Thanks for sharing your blog with us Ian. I appreciate your commentaries, and wish you the best, in this journey of living with PD, an ailment that we never asked for.

Ianfrizell
Ianfrizell in reply to ddmagee1

They used to recommend DBS as a final solution after all of the drugs stopped working - these days they see it as giving back such quality of life that is being recommended for younger patients, the sooner the better in terms of payback.

Ian I look forward to your blog. My GP told me it could not be Parkinson's because I don't have a pill rolling movement. The other thing that struck me was strange chemical smells that nobody else could smell. Often smell was flower like. Also I had few years where my hands broke out in little bumps. Very itchy. Had a lot of dental work with Mercury. However hair analysis does not show much mercury but it shows a whole bunch of aluminum. Mary

Ianfrizell
Ianfrizell in reply to parkie13

Hi Mary

Thanks for your comment. I think little is understood about the toxicity of metals, and it is entirely possible that illnesses are caused, or triggered, by them.

Cheers,

Ian

spot on

Thanks Ian. A clear chronical of your disease progression. I think a library of these from different people could be very useful for a whole lot of uses, but especially educating health professionals.

Hidden
Hidden

Hi. My friend got Parkinson's disease from taking largactal /chlorpromazine anti/psychotic medication.

Ianfrizell
Ianfrizell in reply to Hidden

That's horrifying! I'm avoiding prescription meds until all other options are exhausted!

Nitro53
Nitro53 in reply to Hidden

I don't believe chlorpromazine can give you PD but only the symptoms and they will stop when the drug is stopped. My knowledge from the pharmacist.

Thank you Ian . I found that very interesting. My husband has been displaying symptoms of PD for quite some time . I eventually managed to persuade him to see GP and we are now awaiting an expedited appt with neurologist.

How are you now?

Ianfrizell
Ianfrizell in reply to Jalia

My DBS mainly contains my tremor (it's quite frightening to see how much it has progressed if I turn it off), but have been suffering anxiety and lack of motivation recently...

chartist
chartist in reply to Ianfrizell

Thank you for that Ian! Many people who have DBS don't often mention about that aspect of DBS, but I remember your video where you turned off your DBS in order to show how marijuana also controlled your tremor. It was amazing to watch!

There was another popular video that was similar by a retired policeman who could not get medical marijuana in his state.

Out of curiosity, I was wondering if you've ever tested vitamin B-1 / Thiamine for PD?

Art

Ianfrizell
Ianfrizell in reply to chartist

Hi Art

Here's a link to my vlog about B1 - youtube.com/watch?v=9qudJoV...

Cheers,

Ian

You may also like...