My dear new friends,
I've been on this site for such a short time and you all have taught me so very much and I am so grateful to you and to God! When you see this topic, Finding Joy in the Midst of PD, please know that I might use the words God, my Creator, the afterlife, Heaven etc. Please know that these words are not meant to "raise the hairs" on anyone's arms! What my objective here is to share my experiences, whether they be physical, mental, emotional or spiritual. This might sound crazy but I love all of you already. If you were nearby, I would gladly welcome you into our humble home located about 10 miles north of Baton Rouge, Louisiana! I would make the biggest cup of dark Community coffee and would serve you a piece of King Cake, because since January 6, we have entered Mardi Gras season!
Louis and I belong to one of the PD groups in BR. They persons we encounter are all very nice but I have not bonded with them like I've bonded with you. We meet once a month, sit around a big table (about 30 couples) and hear different topics like the PD boxing classes in BR, the annual PD conference at our big annual Pennington Research Center in BR, etc. after we leave, we mostly don't hear from each other until the leader e-mails us about the next meeting. There is no back and forth banter like on this site!
Louis has taken part in the BIG therapy in BR. Big Movement and BIG voice! Four weeks, four days a week, two hours a day - very intense! It works but many times, he is too fatigued to do it with me! I need to work harder at picking the right time!
Louis slept really, really well last night and that means that I slept well. But getting him down was a whole different story. At about 7 pm, Louis starts to "wilt." I don't want us to go to "bed" bed yet or give his meds quite yet so I tried to make him as comfortable as could be. Sitting in his recliner, propped back, he kept saying how cold he was so I started piling blankets on him. "There's air coming in," he'd keep saying. "Where is the air blowing from?" Finally, I took out the brand new heated mattress cover and I laid it over him and his pile of blankets, turned it on and he relaxed and said that it felt good! YES!!! Two seconds later, however, he raised his head and said, "I've got to poop!" That's when I need my most patience - 7 pm on! I'm tired and his meds are wearing off! And that's why I seek Joy in the midst of PD.
Remember - I don't want to hurt anyone's feelings! I don't seek any followers! And i am speaking for no one else but me! I don't pretend to know all about PD. In fact, compared to some of you, I know that I know very little! When I try to say something funny, I am NOT poking fun at anyone! I don't know about you, but there is very little to laugh at around me right now!
Thank you for listening! Louis has never been one to chatter so you are a captive audience! "Laissez les bobs temps rouler!"