Is he on Sinemet?: i was on Sinemet and... - Cure Parkinson's

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Is he on Sinemet?

8 Replies

i was on Sinemet and researched how the carbidopa depletes B6 which isnecessary for

many metabolics, thats why people loose weight. I lost 65 # and started taking mega doses

of B6, much better, and starting to gain weight, and my tremors are getting better, alot better,

considering this is the major symptom I have. I also supplement with Mucuna P. so I don't have

to take so much Sinemet. I take 100 mg/day but i have heard of folks taking much more.

Hope it helps, and God Bless

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8 Replies
wifeofparky profile image
wifeofparky

I gave my husband 2 Shaklee B Complex capsules every day. He could tell the difference when he missed a dose.

Nehd profile image
Nehd in reply to wifeofparky

My husband has had two B-12 shots....they were a real boost, although they only last about a week. I had supplimented with 2 1000 MCG B-12 with folic acid but he got a rash...I think the shot was still working, so backed off the suppliment. With the shot 3 weeks ago today I see a need for the B again...it really does work...just be careful with folic acid...no more than 1200 MCG a day...

Donzim profile image
Donzim

Suggest you get a knowledgable doc to advise you on b6. You are right that it is depleted but too much can cause irreversible nerve damage.

hanifab23 profile image
hanifab23

Thank you for the infor

please tell what brand of Macuna and how many B6 do you take

are you taking sinemet I take 2.5 tablets 3 times a day 25/100

but I do not feel good too tired to do aything so much pain and muscle stiffness

seeing a chiropractor he does lazer treatment twice a week little releife

getting very frustrated as I can not do much

any information will help

Hikoi profile image
Hikoi in reply to hanifab23

Handfab you are under the care of a movement disorder specialist.? Currently you are taking three big doses of Sinimet (l dopa) in 24 hrs, a more popular way is to take smaller doses more frequently so it keeps the levels in your body steady - hopefully. Would be worth discussing with your MD. if you take Macuna you are adding more of Ldopa in a different form.

hanifab23 profile image
hanifab23 in reply to Hikoi

Thank you Hikoi

I take one tablet at 9.00am second one around 1.00pm and sometimes i take one at 5.00pm I dont like the sinemet thats why i am looking into alternative natural therapy

stevie3 profile image
stevie3

Handfab - I live in the uk and I order Mucuna capsules from Natural Herbal Health on Amazon. I also use Zandopa which is available on Amazon but is cheaper from a number of suppliers on eBay for the exact same product. This isn't an endorsement, just information. I'm not on any medication yet except for aziclet. I have a slight tremor (more of a twitch actually) and a lot of stiffness. In the morning I use painkillers for the stiffness so I can get going. I go to the gym and do yoga which helps the stiffness but also with that 'I can't be bothered' feeling. Some days I positively have to drag myself there but I'm never sorry I did. I work within my own limitations.

hanifab23 profile image
hanifab23 in reply to stevie3

Thank you Stevie3

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