DBS update: It's 5 months since I underwent... - Cure Parkinson's

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DBS update

etterus profile image
7 Replies

It's 5 months since I underwent this procedure. I was programmed by my local neuro with some good results. However at my last visit she stated that I was doing great and should wait 8 weeks for follow up. I described my off times as increasing and my gait pretty poor from 6-9pm as dismally slow. She respoended that it takes time and if I dont like her position I should go back to OregonScience and Health University... which I promptly scheduled.

One week after programming by their guru I have had 90% improvement in just about everything from sleep to speaking! I was instructed in how I can adjust the unit but currently have no need to. I can feel my strengthening efforts of motor unit recruitment in the gym where as before I always felt that I was just beating a dead horse. Now I'm looking forward to neuroplastic improvements .... If you're considering it, don't wait too long.

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etterus profile image
etterus
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metacognito profile image
metacognito

Note how one fellow was able to 'fine tune' his electrode placement:

youtube.com/watch?v=T3QQOQA...

libberty21 profile image
libberty21

Wish I could get mine sorted. Can't convince the doctor's im worse than before the op . it's such a wasre having the surgery.

Kadie57 profile image
Kadie57 in reply to libberty21

You should not have to convince any one anything, if your are worse you are the only one who knows this. Find dbs nuero that can adjust your machine properly, I found when a doctor wanted me to convince them anything they didn't not have my best interest in on my path to living with Parkinson. I went to a movement and disorder clinic where they specialize in Pd etc. It was the best thing I could have ever done for my self, you must look after you, doctors get paid for providing a service, if this doctor needs you to convince him or her then move on or discuss the situation with a head of dept. or other words go over their head

openbook profile image
openbook

youtu.be/7udZ5ux0dYE

michaela13 profile image
michaela13

These videos were great! How long does dbs last?

in reply to michaela13

The rest of your life

libberty21 profile image
libberty21

Thank you you are right I do need to find some one to sort me out

Going to see my GP this week and get sorted

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