Contrdicting information: Feeling a little... - Cure Parkinson's

Cure Parkinson's

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Contrdicting information

12stargate profile image
23 Replies

Feeling a little flustered this morning about all the contradicting information I read.

Caffeing is good for 'parkies', but it will interrupt sleep.

Some of the medications we take that help our symptoms, may also interfer with our sleep.

This is good but read with good info about sleeping well:

mail.google.com/mail/u/0/#i...

I get that next to exercise, getting good sleep is the most important thing we can do for ourself.

For PDs and everyone else.

I am really 'working on' my sleep. What can I do throughout the day that promotes good sleep?

If you are having sleep problems, you may find the above article very interesting and helpful.

I also downloaded an app on my iPhone that measures sleep. And the iPhone is enough. You don't need a writstband too. Just the app. Mine is called "Sleep cycle" and costs at the most $2.99.

I am also working on getting enough walking in.

But that is for another post.

Please enjoy your day!!

:)

Hugs and love from Eva G.

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12stargate profile image
12stargate
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23 Replies
grower profile image
grower

Not a good link? Just took me to email...

12stargate profile image
12stargate in reply to grower

Sorry about that grower :(

BillDavid profile image
BillDavid

I reside in the States. My information is that PD in itself does mess up sleep. For example, I have REM Sleep Disorder. A thought from your Post. You mentioned that it is said that caffeine is helpful for PD, and another that caffeine disturbs sleep.

I wonder if both references are for the same population? Some times it is a trade off for PwP, the help for PD of more benefit than any sleep disturbance which is contributed to my PD any way.

BillDavid

12stargate profile image
12stargate in reply to BillDavid

Yes, Bill, there is so much info out there. We just have to use our own wits and those of the people on this site and doctore, to sifer out what works and what does not!

The app on iPhone called Sleep Cycle is really helping me in tracking sleep, and how i can better prepare for sleep.

Good night.

Love from Eva

:)

BillDavid profile image
BillDavid in reply to 12stargate

Thanks

Bitsy profile image
Bitsy

I guess you only have coffee in the morning so that by evening the caffeine has worn off?

12stargate profile image
12stargate in reply to Bitsy

Exactly Bitsy!

I read an article that said it takes caffein 5 h to get out of the system.

I just drink mine in the morning. Then I am safe.

Love, Eva

:)

jillannf6 profile image
jillannf6 in reply to Bitsy

I tend to do this i.e. 2 strong cups of espresso coffee 4 breakfast then that is it for my caffeine for the day and it does not affect my ability to sleep esp; as i have a couple of glasses of red wine for the consitpation probs which goes with the PSP (which i have )

google it if you do not know what it is ,..

lol jill

:-)

ps i am in the UK but i guess you are in the US of A!

Court profile image
Court

I know what you mean. There is a lot of conflicting information available. I guess you have to find one that suits you. I have been looking at the times I take my meds and, with the help of my Consultant altered tablet times. I take one Requip a day and find it works better when I take it last thing at night. Whereas another person finds it suits them to take it in the morning. It really is a matter of trial and error.

Sue

12stargate profile image
12stargate in reply to Court

Sue, I am going to try Requip at night.

Love, Eva

:)

Kadie57 profile image
Kadie57

I have finally been sleeping great( Sorry ) I had a rough patch after my husband died but I found that not napping during the day and going to bed at a set time each night helps AND no TV in the bedroom, you train the brain to think bed , sleep, instead of bed, TV time. My neuro suggest 3 cups pf coffee daily, it really helped me, and I don't stay awake at night from it but I don't coffee to late in the day either. hugs & love back to you, I have an ortho app. today to see about a knee replacement. since I walk so well already please lets replace my knee LOL take care p.s lavendar oil helps you sleep

12stargate profile image
12stargate in reply to Kadie57

Thank You Kadie!!

Let me know how it goes at the doctor today?

Kadie57 profile image
Kadie57 in reply to 12stargate

I have a knee replacement set for the last week of December, if I can find some care for 10 days in my home or I will be nursing home bound, But first things first finances & housing adjustment are huge since husband past away I lost 1900.00 in income. Poof!!

12stargate profile image
12stargate in reply to Kadie57

I sure hope you can get help in your home!

Hugs, Eva

:)

Kadie57 profile image
Kadie57 in reply to 12stargate

Thanks what I need now is prayer for wisdom & answers.

Such a mess on top of having PD. I have been down a long road and always God took care of me, it s just hard to see how right now.

12stargate profile image
12stargate in reply to Kadie57

Oh Katie, this must be tough!!

I also Know God will take care of you!!

One day at a time, one step at a time, He will show you the way! I will Know this for you!

Just go slow, in your mind, and everything will work out brilliantly.

Hugs and love from Eva G.

:)

Joanne_Joyce profile image
Joanne_Joyce in reply to Kadie57

I'll be praying for you Kadie.

Kadie57 profile image
Kadie57 in reply to Joanne_Joyce

Thanks nothing earth shattering to report but it would be nice if God would send email then I would know what to do.

12stargate profile image
12stargate in reply to Kadie57

Dear Katie;

The guidance will come.

Hugs and love, Eva G

:)

landman profile image
landman

Talk to your RX supplier (Pharmacist) for scheduling and order of taking RX. I get better sleep since I removed clock in bedroom.

12stargate profile image
12stargate in reply to landman

Landman;

That has helped me too:)

My post BY THE BOOK is an answer to this post. The only way I could include the chart.

DEAT profile image
DEAT

Hi Eva

Since being diagnosed 7 mths ago i think the most frustrating thing has been contradictory information. Or out dated information. Or incomplete information.

That is why i like this site so much. PWP sharing actual experiences, what works for them, what doesn't. Some PWP are very educated re their PD and offer valuable insight also.

Regards

D.

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