I assume most people with Parkinsons have a Primary Care Physician (PCP) and a Neurologist. As the disease progresses, and particularly at the last phase of the disease, who's in the driver's seat as far as medical care is concerned? I assume neurologists make diagnoses and are more familiar with medication options. Is there an expectation of roles assumed from the professional side, and how would those roles be described?
Also I hear repeatedly that its important that your Neurologist have certification as an MDS (Movement Disorder Specialist). If its so important (and Parkinsons is the second most popular neurological problem) I find it surprising that EVERY neurologist doesn't have this certification. What special skill / knowledge set do those with an MDS possess? Is it simply diagnostic ? Is it that they are more specialized in Parkinsons... ie have a higher percentage of patients who have PD? Would be better at symptom control with drugs? Are more connected with Clinical Trials? What exactly are the benefits in having an your neurologist have this designation?