Survey to understand which Parkinson's symptoms impact your quality of life

We would be so grateful if you and your spouse/partner/family members could spare 20 minutes to complete a survey.

The purpose of this survey is to collect important information that will provide a more complete understanding of the symptoms you experience as a person with Parkinson's (PwP), how they may change through the day and how they impact your life. The survey can be accessed here: surveymonkey.com/s/PwP_Open...

To help us gain a complete picture of living with Parkinson’s we would also like to survey the person who you view as a key support to you for example, your partner or a key family member or a carer. More details on the survey and instructions on how to share the survey with this key support person are included within the survey. surveymonkey.com/s/CP_Open_...

All information collected through this survey will be anonymised.

On behalf of us all at The Cure Parkinson's Trust and Parkinson's Movement, thank you so much for taking part. Your experiences are so important to help us gain a better understanding of the variability of Parkinson's.

6 Replies

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  • I accidentally hit a key - I think it was the delete key resulting in complete loss of all answers. It took me ages to fill in this survey certainly more than 20 or 25 minutes. I am not going to bother going through all that again. Also please would it be possible to keep the headings visible while scrolling through the options / multiple guess etc

  • I relented and did the survey all again - gold star please.

  • is this poll suitable for PSP sufferers too ?

  • A very detailed and thought provoking survey. A good regular process to undergo, regularly. Pete is correct about scrolling, but nothing serious.

    Thanks and I hope that it is helpful.

    See you in Montreal, this October!

  • Is this a survey for people with Parkinson's only or is there a carer's aspect to it?

  • Glad to fill it out!!

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