Ice-breaker: What topics or questions would you... - Pain Concern

Pain Concern

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Ice-breaker

10 Replies

What topics or questions would you like to discuss or learn about?

10 Replies
Cazie50 profile image
Cazie50

Great to see Pain Concern on HealthUnlocked. I'd like to learn more about different services and lack of knowledge by some health professionals about what pain really means to a patient.

disney-girl profile image
disney-girl

I would like tips from others related to changes they have made/ how they manage work with chronic pain.

I would like to see chronic pain have the same level of support, integrity and understanding as all the others, eg heart, cancer.

I would like to to be officially recognized as a condition in its own right and not a symptom of something else.

Thanks for all your suggestions. Hopefully as more people join, there'll be more discussion - feel free to post your own blogs and questions.

Londoner profile image
Londoner

I think it's important to help pain sufferers tackle social isolation they face e.g. finding alternative ways to make new friends, take part in leisure activities etc

ChelseagirlSue profile image
ChelseagirlSue

Hi everyone. I hope this is the right place to post an introduction. I am Sue carer for my husband who suffers with chronic pain. I agree with Zanna that chronic pain should be a recognized condition. My husband has recently undergone neurological tests and we were told today that the tremors he has in his hands are caused by 'Chronic pain syndrome'. The pain he has affects both our lives daily and we both suffer from social isolation. I searched the net and found this forum and am more than happy to share experiences and hopefully gain some advice to help me care for my husband and his pain.

Hi Sue,

Thanks for introucing yourself and welcome to the site. Feel free to post questions or blog about you and your husband's experience. You may find the resources on Pain Concern's website useful too: painconcern.org.uk/

tettridge profile image
tettridge

Hi

A few years back my doctor sent me on a Pain Management course. that was when I really found out that there were other people out there with chronic pain. there were only a few of us in the course but we all had different triggers and reasons for the pains we were (are) suffering from. the course was not a 'get well' course but a 'how can I manage my pain' course. A real insight from health professionals who run these courses and it has certainly helped me in coping with the pain and I am still trying to do some of the things they have highlighted for me.

Kindest Regards

Terry

DippyHippyChick profile image
DippyHippyChick

Hi, sorry, maybei should have introduced myself here, before jumping in and posting before!

I've been in constant pain for 16 years, have had 9 hip operations, including 5 hip replacements starting in my thirties! The last op was to completely remove all implants leaving me with severely restricted mobility, and continuing pain.

The latest diagnosis is CRPS, like Sue's husband, and now I'm again doing the rounds of pain management!

Hopefully thenext treatment, spinal cord stimulator, will do the trick......!

19925 profile image
19925

impingement of shoulders