I’m new. Hypermobility syndrome

[Sore1234]

I’ve been told from my early teens this is what I have. Been told at first it was simple growing pains and I knew this was not the case. Was eventually sent for ultrasound then few years later an X-ray, physio sessions etc.

I went private this week as the pain is getting unbearable, was told the same things as before, hypermobility, I’ve now been referred to a specialist physiotherapist (who’s knows how long with Covid before that can start) I cannot sleep. I toss and turn, cry, shoulders click, discomfort in my hips. I’m in pain all day every day, needless to say I’m in my very early 20’s and I do not want to be living with this pain for the rest of my life

It’s mentally draining me and I know it affects the ones I’m close with too which hurts me even more. Your family and partner do not wish to hear on a daily occurrence;

“I’m sore “ , “I’m tired”, “my shoulders aching” the list goes on.

I know hypermobility is so common and doesn’t always come with pain side affects but I am in agony every day of my life, I need to know if there’s people in the same boat as me. (I know there Are worse off things than this but I’m struggling with the pain)

[Petrina_gmfc]

Hi I have that all my joints discolate and when it happens the pain is very sore I then take pain killers for the pain also my older son has it .I have had a lot of operations on both knees to try and stop it happing I have also been for physical therapy

[HM_12212]

Hello I also have excruciating pain in my legs and I have Hypermobility too 😔