Trigeminal neuralgia: TN. the worst condition... - Pain Concern

Pain Concern

38,277 members11,780 posts

Trigeminal neuralgia

Papapickle profile image
3 Replies

TN. the worst condition that I have ever encountered.

Painful, embarrassing and debilitating.

Just wish it would fuck off.

C

Written by
Papapickle profile image
Papapickle
To view profiles and participate in discussions please or .
3 Replies
Maceymae profile image
Maceymae

I hear ya. I have had it years. It is like having toothaches on all the teeth top and bottom on 1 side. Sinus pain, eye pain ah the list is endless. I used to get nerve blocks and I had radio frequency ablation which worked for a few months. It came back with a bang and my Neurologist prescribed tegretol. I haven't taken it as I really can't add another med to the mix.

The cold temperature has made it worse waiting to see the pain specialist again. I would rather the ablation.

Hoping you get relief soon.

deejames profile image
deejames

I have had it for years. I take Tegratol which keeps it managable in that I only get an attack every day or so. That attack can last for up to half an hour but I can bear it. At the beginning it drove me to despair.

I can feel for you

Dee

BlanketTime1 profile image
BlanketTime1

it is the devil. when it first happened, I had no idea what was going on. I told my doctor about my 'stabbing face pain,' he nodded, said the name, and moved on. what? obviously he'd never experienced it. once Maceymae I thought I had simultaneous rapidly-moving cavities in all of my teeth, lol.

You may also like...

Trigeminal Neuralgia

I have been suffering with an on off aching pain above my left molar teeth for nearly 6 months. It...

Trigeminal Neuralgia pain

rare health condition . Are there any other members on the forum that have this condition ?...

Occipital Neuralgia: UPDATE

despite these nasty pains! I had posted something last week about me possibly having Occipital...

Postherpetic neuralgia from Shingles

450mg. But now there seems to reduction in pain. I have read of an Intercostal nerve block but 1:...

Occipital Neuralgia & constant neck stiffness

unbearable pain & if anyone can offer any advice that would be wonderful x some days I just wanna...