I was diagnosed back in 2009 with fibromyalgia and osteoarthritis and since then the list keeps getting longer. I used to live in England but moved to wales in 2016.
It seems hard to be able to access the health needs and where to go for help and advice both in England and wales.
Since been diagnosed with the two first problems I have also been diagnosed with degeneration of the spine, and a gap in my left knee. Last month I was also diagnosed with hyper mobility condition. Great.
Pain seems to be my life long enemy these days. I can hardly walk let alone buy some shoes that either fit me or support my feet and feel comfy.
Those days that you feel so much pain that non off the normal pain reliefs will work for you. I have managed to obtain some morphine from my Dr for those days that hurt more,but its a toss up between pain and being aware off everything around you.
I have been to everything that you can think off ,rheumatologist 3 times, pain clinic once but they was a waste off time and energy, cbt done it,didn't help. Physio done, pills done, podiontist I had to ask to be referred too, so I have two that are helping me,but for the special foot ware you have to be in a certain category to be able to have the foot ware.
When ever I go to my drs it just seems a waste off time, I changed who I had seen as the Dr wasn't very helpful or understanding. She had sent me to a pain clinic but didn't say where it was. The health care in Wales is very few and in between. They had sent me to south wales for pain clinic which would take me 4 hours to get too. My point is that it seems that you have to figure it out for yourself off the help you can get. I'm waiting now to see if I can have help from across the border ,that's if the Welsh government accepts it. As they only have 2 hospitals that deal with these sort off health problems. Non are located in Montgomery. All outside off it. I'm waiting to see if they will let me be referred to the Q.E in Birmingham.
Just seems like once your referred, diagnosed the health professionals don't want to know or don't know his else to help you.
Don't even get me started on the pip benefit. With that you have to be on drugs, confirmed that you can't do anything for yourself and physically not able to walk.
Its so hard to live and be disabled, you see a lot of disabled people able to walk and work,but many off us find both difficult to do. It becomes frustrating, when you have to deal with fatigue and pain,no one understands and everyone is too judgemental. Your labelled and judged all to often.