Update on diagnoses

Hi all

I got diagnosed with EDS, POTS and possible tightened filum/tethered cord yesterday and also have a DX of sero-negative inflammatory arthritis and vasculitis which explains a lot of my pain. Still have the bilateral bursitis and the piriformis syndrome but am getting some injections today so hopefully the piriformis issue will improve.

I've had a big improvement in my nerve pain due to duloxetine and good physiotherapy so my walking and sitting have improved no end.

I will always have pain due to the arthritis and EDS but I feel much more confident about managing this now the nerve pain is improved.

Things can get better xx


1 Reply

  • It's always good to hear that someone's found something that works for them. You've got a lot going on so I'm sure even a little relief is better than nothing. X

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