I got diagnosed with EDS, POTS and possible tightened filum/tethered cord yesterday and also have a DX of sero-negative inflammatory arthritis and vasculitis which explains a lot of my pain. Still have the bilateral bursitis and the piriformis syndrome but am getting some injections today so hopefully the piriformis issue will improve.
I've had a big improvement in my nerve pain due to duloxetine and good physiotherapy so my walking and sitting have improved no end.
I will always have pain due to the arthritis and EDS but I feel much more confident about managing this now the nerve pain is improved.
Things can get better xx