Pagets With MGUS, What I should know about... - Paget’s Support

Paget’s Support

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Pagets With MGUS, What I should know about it,

takka profile image
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I would be pleased for any information on this , As have been treated before with pamidronate and then zoledrate acid, for pagets...Does also affect the Mgus IgG kappa that I have or vice versa, is there any masking from either....just that when i have had treatment for pagets i am sure that it might have that also that lowered the mgus, ? or is that just coincence, should my treatments be anyting different..when pagets is active with having the mgus , i have a pagetic lesion to, which had biopsy early 1990s which was ok, i have never had a bone marrow testing if applicable to my questions, I would be pleased for any enlightenment this, so that i may understand better. and query if needs be with my doctor if i need to etc... hoping for a response as feel in the dark as such thank you

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takka
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You might like to email the Paget's Association's helpline. The email address is helpline@paget.org.uk

takka profile image
takka in reply to

thank you have now done that

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