JAK+ to JAK2- with ET

[GardenGal3]

Latest news from the Hematologist: my JAK2+ from Jan 2012, is now JAK2-, anybody else every had this happen. The doctor was shocked by this! OK folks with PV, ET or MF please chime in!

[katiewalsh]

Hi. I’ve never heard of this & wonder if somhow one of the labs made a mistake. It’ll be interesting to see what others know. Katie

[GardenGal3 in reply to katiewalsh]

Doctor said the labs most likely did the blood tests right both times...

[Marie_14 in reply to GardenGal3]

This happened to my husband too! He was told he was JAK positive so only hydroxyurea available but no cure! 12 months later at a different hospital he was told he was JAK- but that he was suitable for Ruxitinilib.

[GardenGal3 in reply to Marie_14]

Interesting! Well, my genetics are being carefully checked, this time by a hematologist who is more of an expert on MPNs rather than the usual Hematologist/Oncologist doctors (2 of them) I have had since 2012.

[runnerbird71 in reply to GardenGal3]

How are you doing now? I am in Georgia too