I have been On Rubraca for over a month now, and know that I need to be protecting my skin from the sun, but the actual sensitivity is confounding me. I met my grandchildren in the park yesterday and had covered my face in factor thirty. I had not used any on my body as I was wearing a cost and hat. By the evening, my face was red, two areas of my neck were burning, also my wrists where my hands were poking out of my coat!
I really can't imagine how difficult it will be when summer actually arrives, as I enjoy a bit of gardening and being out and about. Had anyone else experienced this as the weather is warming up?
Jenny
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Oh goodness that's not good ,hope factor 50 works for you, I put factor 30 on my shopping list ,better change that ,I started Rubraca last Sunday ,I've felt so sick despite taking anti sickness ,so I haven't been outside the house ,does it get easier. Hope with higher factor you'll be able to enjoy the sun .Cheryl.xx
Hi. I haven't actually felt much nausea on Rubraca. I was given tablets for the first month but didn't really need them. I hope you get this sorted soon as it really pulls you down.
Yes its getting me down ,I didn't gave any nausea on chemo ,so bit of a shock ,I'm going to phone on Monday for advice ,I may need a lower dose of Rubraca ,thanks for replying.
I rarely get anything more than a tiny bit of nausea as long as I take in plenty of water. My oncologist also suggested I took it after breakfast and before bed so I do 11:00am and 11:00pm. That way I’ve eaten before I take it and then get busy with something so I’m not thinking about it. Then I take it before bed and presumably sleep through any nausea. I think water intake is key.
Re burning yes I do catch the sun very easily so high factor and a great tan 😂
I take it after breakfast as well ,I do 9:30 am and pm ,sleep OK ,bit better today ,I've taken the anti sickness three times a day ,maybe having a build up effect.x
I hope it regulates itself for you because feeling sick is so horrible. I’ve been on it for a year now I just hope and pray it keeps working it’s magic. X
Factor 50 is good, I’m very fair skinned with freckles so use it most days and am fine. Chemo really changes our sensitivity to the sun so, for me, the sunscreen has become part of my daily routine since I finished my treatment. Hope things improves for you, stay well and safe ❤️xx Jane
Yes me too. I'm on Rubraca and the hot day we had over Easter I put factor 30 on my face was covered up elsewhere and on the evening my face was burning.!! I guess it's factor 50 then.
Hi Jenny, My Oncologist advised me to use a factor 50 so i am using Boots No 7 on my face. I noticed when I was in the car when Sun was on my side that my neck got red, but I just used after Sun which worked. It is difficult after being shut in for so long and all you want is to get out in the better weather. We went to local botanical gardens this morning quite a chilly breeze with Sun out,but we did walk for an hour,and sat for a short time having a takeaway coffee.
My feelings exactly. I finished 18 weeks of carbo/taxol in January and have been sun sensitive since. Now I am on Niraparib and the sensitivity is worse. I seem to burn even in Cumbria in March with factor 50! x
When I first started Niraparib in June 2018 I didn’t know about sun sensitivity but boy did I find out ! My skin reacted so badly to the sun, it wasn’t sunburn as such as I’m careful anyway, it was more a reaction , almost like an allergy. A tingling and burning sensation that literally started at my ears. It was quite scary. It was so bad that I stopped taking the drug untill I could talk to my Oncologist. That reaction to the sun has lessened over time but it’s wide brimmed hats, light scarves and long sleeved tee shirts for me in high summer. I also use factor 50 on face and hands. I can tolerate the sun at this time of year so try to get a little without factor 50 to top up my vitamin D.
Try some light gardening gloves in addition to the above. Hopefully it will lessen over time for you for you too. It shouldnt mean you can never go outside again, rather you will just have to be mindful of the sun. I stay out of it as best I can.
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