Hello
I’m really hoping someone can help
My sister has been told there are no more options for treatment for her ovarian cancer. She has had 4 lots of treatment over 4 years.
Can any one suggest any alternative treatments or where we go from here. WE we want to do all we can to give her more time.
She is treated at the UCH in London.
Thank you
Xxx
Hi Has your sister considered asking for a second opinion or whether there are any trials she could try? Details of trials are found on the Cancer Research website xx Kathy xx
Hi
Yes we are going to ask but feel time is short so looking also for alternatives so we can also get going or plan to If no trials available.
Just desperate to help her.
Diane.xx
Hi Diane, i tottally get that and I hope you get the help you need. Big hugs, Kathy xx
Hi Giane. It's hard to suggest alternatives when we don't know what's been tried. You clearly need an aggressive chemo. The most aggressive one I know of is Caelyx but if she's had 4 treatments already, then she's probably already tried Caelyx. Best wishes. Pauline.
Hi
Sorry I know I haven’t been clear.
The consultant has said she cannot have any more chemo as it’s not working and the cancer has grown significantly. She has been Cisplatin Carboplatin Docetaxel
And just stopped Paclitaxel as the cancer has spread and not working. She has been told it’s palliative care now. We are looking at everything we can to have another discussion with the doctor on Tuesday but want to be to disagree with his plan and be armed with as much information as possible.
Xx
Is your sister in reasonable health, notwithstanding the cancer? You could ask her team why they are not considering Caelyx.
Unfortunately she isn’t. Her bowel is blocked and her cancer is extensive. It’s now in her bowel but not in other organs.
Thank you for replying.
Xx
I am in the U.S on a trail NRG -009. The trail is no longer accepting but thought you might look into Tecentriq which is a immunothaphy drug. Doing well. Hope that might help?
I can’t suggest any drugs but did your sister alter her diet. A whole food, non processed, no sugar diet has been making headlines for a while now in starving the cancer. I follow a strict whole food diet, have fresh garlic, ginger and turmeric twice day along with various natural supplements like curcummin. The idea is to fuel your body with a good variety of wholesome foods so your body is not wasting time breaking down foods that are processed full of sugar and additives, so it can concentrate on fighting the cancer cells. I have at least one green juice a day (kale, spinach, celery, leafy greens) and lots of fruit, veg, nuts etc. You don’t have to go completely vegan, just choose carefully where the meat comes from. Most farmed animals are pumped full of hormones and antibiotics. And if you google cancer it loves animal protein and sugar. I’m not saying it’s a miracle cure but it can’t hurt. I personally feel that I am helping my body help itself.
Agree with Flower2011 - [edited by moderator] if your sister is able to cope with a high fibre diet and doesn't have a blockage. Cut right down or cut out animal products (dairy, fish, meat and specially chicken and eggs) to reduce glutamates, cut out refined sugar wherever possible, eat whole grains, nuts, whole foods such as brown pasta, brown rice instead of white, green smoothies made in a blender or nutribullet so the fibre's still in there, using dark green leaves, broccoli, spinach is particularly good, flax seeds and any other seed mixes including chia, lots of berries (blueberries, strawberries particularly). and other fruits, Green tea and Earl Grey tea, whole spectrum CBD oil 4 times a day or more, couple of squares of 85% cocoa solid chocolate a day. Berberine before eating, and you might want to check out the Joe Tippens protocol on line... I did all this and kept my cancer subdued post surgery for the last two and a half years with no chemo, although it was expected to return very quickly as it was aggressive. My oncologist for the first year or so seemed somewhat irritated that I had so little cancer activity going on, made me laugh...though she never asked what I was doing. I also used to have a large slice of lemon in hot water with a teaspoon of bicarb every morning before food... Best [edited by moderator] fruit is lemon, best green leaf is spinach... a tablespoon of nutritional yeast flakes a day are useful too, good sprinkled over pasta dishes, although I just used to eat it straight out of the pack otherwise.
I am now taking chemo because its now or never, only got probably 9 months left, and this blasted virus means they won't offer it again, so I can't have the luxury of waiting a bit longer; I'm lucky to have been offered it at all because a lot of cancer treatment has been halted because of Covid - Covid also meant my local hospice, very over stretched at the best of times, is now really struggling to provide a full palliative service - they've got Covid in there too. While I'm on chemo, I will eat whatever I fancy, expecting to feel off as the treatment progresses though.
Talk to your sister, if she eats a more normal western diet most of the time, she may find these changes very onerous (because they are, I thought I was going to starve to death initially, didn't know what to eat instead) and would rather not [edited by moderator].
Best of luck to you both
Miriam
Hello! In addition, I have tried other healing options like Reiki, an ancient Asian healing method. Meditation is big for me also breathing in the goodness and breath out the cancer with visualizations. I have also used reflexology and found it restorative and powerful.
There is a book called Radical Remissions that I found helpful and empowering.
I was diagnosed in June 2019 with ovarian cancer and a CA125 of 8,500. Was treated weekly with a low dose of Taxol (and Carbo every 3rd week) because I was too sick to tolerate big doses every 3 weeks which was the original plan. By December my number was down to 23. I had a total hysterectomy in January and now, for the past 3 months I have been at a 9.
There is hope! Empower yourself with whatever alternative healing method is right for you, a long with conventional medicine.
Sending love and light.
Thank you so much for the response. Will look for the book now. All the best for you. Xxx
She can try the Care Oncology Clinic’s protocol that’s uses off label repurposed drugs that fight cancer metabolically. Also high dose IV-C, IV- ozone, IV-artesunate, and mistletoe injections.
COC (Care Oncology Clinic) follows the protocol suggested in Jane McLelland’s book How to Starve Cancer. I’m following it to the best of my ability and my ca125 has been stable since chemo ended last year.
I recooend the book and joining the Facebook page for support too
Wishing you the very best
Alex
COC ! Xx
I don't know if this is applicable or even available to your sister, but I am starting an immunotherapy called Keytruda (pembrolizumab). It's not normally used for ovarian, but my team thinks it may help. There have been a couple trials. Since my insurance wouldn't pay for it, Merck has approved "compassionate use" for me. This allows me to receive the drug even though it's not "approved" for my cancer specifically. I've included a link below.
Definitely worth asking about.
ovariancancernewstoday.com/...
All the best to you and your sister!
Kim
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