Post chemo side effects?

Hi, I had my last , of 6, chemo's 3 weeks ago and the last couple of days my mouth has become really sore plus there are about 4 mouth ulcers. In the mornings my mouth is very dry with the impression of my teeth on my tongue. It looks like dehydration but I drink about 2 litres a day. Has anyone had anything similar after they finished chemo? Had a massive mouth ulcer after round 4 but thought I wouldn't have it again, especially now I've finished. Maybe just wishful thinking as I was told it takes 3 months for all the chemical to work their way out .

Some of my energy has returned this week and I've been talking a lot - it has crossed my mind that this could be a reason!!

Sarah🌷

11 Replies

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  • Sarah-

    Congratulations on completing your chemo! 💥🤛🏻💪🏻

    I am so sorry you are having these lingering effects. I haven't had the misfortune of suffering from mouth sores so can't offer you any advice. Although I am confident it's not from being too talkative 🤐😂🤣

    Hope it goes away soon so you can fully enjoy your end of treatment! I am counting down myself!

    I'm sure others will be along with some practical advice for you.

    Wishing you a very long and happy remission!

    Anne 🌸🌼🌺

  • Hi Anne,

    Thanks for your message. Yes, it's a relief to finish chemo. Just need hair now😁!!

    Wishing you all the very best with the rest of your treatment and side effects are manageable.

    Sarah🌷

  • If you discover any hair growth miracles- do share!!

  • I had something similar- for me it felt like my mouth had been scalded. I literally drank litres of water to try to ease it, but it didn't make any difference. I had it after chemos 4-6 and it went away just before each round. A weird sensation. Luckily no mouth ulcers though - I used a salt-water mouth rinse each day to help.

    I hope the feeling subsides soon, but maybe ring your CNS if it doesn't?

  • Hi, weirdly it was chemo 4 and now, post chemo 6 that I have this sore mouth. Interesting about water; I've been drinking lots with no effect. Lots of salt water , mouth wash and bonjela close to hand. I guess like all the other side effects it will pass.

    All the very best,

    Sarah🌷

  • Hi Sarah,

    Great news about the last chemo,and also your energy levels are good, now to fix the side effect I do think your body need that 3 month to recuperate, give yourself time your body has been through quite a battle and win.

    As for the dry mouth I had the same it would wake me up through the night, you can buy a dry mouth wash over the counter this does help and I would make up a jug of salt water, to rinse through out the day, if this does not help again there is a gel you can buy over the counter I did use it with success,

    I'm sorry I did not give you the names but I'm away at the moment and will be back home on Monday I will post the that information then.

    Cheers Lorraine xx

  • Hi Lorraine, thanks for your message. It's good to know others had this side effect post chemo. Yes please, great if you could post the names of the gel and mouthwash that you found helpful.

    Hope you are keeping well.

    Sarah🌷

  • Hi Sarah,

    I'm home had a lovely couple day at the beach, I had to come home my first Taxol to-morrow. This is the mouth wash I used it's called Biotene Dry Mouth wash.

    The gel I used on the ulcers Bonjela gel.

    As I said keep a jug of salty water and rinse through out the day, How accessible is your cancer clinic ? ring and get advice also,

    Hope this helps any mouth problem that makes it hard to eat or just be comfortable is terrible.

    Keep well.

    Cheers Lorraine

  • Hi Lorraine, glad you had a lovely few days away. All the very best with your treatment tomorrow- hope side effects won't be too bad. Thanks for going to the trouble send me the detdils for mouthwash and bonjela.

    All the very best,

    Sarah 🌷

  • Hi Sarah. I used to wake up with my tongue stuck to the roof of my mouth and have to peel it off! I also had mouth ulcers and was given two prescriptions by the hospital. One to use during the day and one to prevent pain before eating. They worked a lot better than anything I got from the chemist, so I should give your CNS a ring.

    Jenny

  • My mum was given a medicated mouth wash in hospital for her sore mouth? That might be worth asking for?

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