Trials: Has any of you fine people had the... - My Ovacome

My Ovacome

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Trials

Luk4ward profile image
7 Replies

Has any of you fine people had the octopus trial suggested to you?

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Luk4ward profile image
Luk4ward
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7 Replies
Choski profile image
Choski

Hadn't heard of it but then I'm only newly diagnosed with Clear Cell so the trial wouldn't apply to me . It looks interesting and good to see that more trials are taking place for this. 

In case others haven't heard here is the link 

ukctg.nihr.ac.uk/trials/tri...

Luk4ward profile image
Luk4ward in reply toChoski

Hi Choski, yes trials seem to be coming into there own.

Gina555 profile image
Gina555

I was on a phase 1 trial of Taxol and AZD2014 (it wasn't called Octopus, but it's the same drugs).  It did work for a while but had to be stopped when I got pneumonitis.  Until then, the side effects were minimal.

Luk4ward profile image
Luk4ward in reply toGina555

Unfortunate you got pneumonitis Gina, is that one of the possible side effects?

Gina555 profile image
Gina555 in reply toLuk4ward

Yes, I think it is, but I wouldn't let it put you off, as everyone is different. They said it could have been caused by the drug, or by some kind of unidentified infection, they weren't sure.  I was quite run down at the time, as I'd just had flu.

pleonastico profile image
pleonastico

No bit I think the lady opposite me yesterday during chemo was on it. Won't see her for another 3 weeks bit I'll ask her how it is going!

Vicki

Luk4ward profile image
Luk4ward in reply topleonastico

Thanks

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