Information Needed for Ovarian Carcinosarcoma

[Rona84]

My aunt was diagnosed one week ago with Ovarian Carcinosarcoma, Stage 2B. I know it's extremely rare and I was wondering if you know, or anyone reading this knows of a doctor in the US that have seen the most cases so she can get the best treatment. I'm happy they caught it so early but I'm worried that the gynocologic oncologist treating her has not seen this disease before - just trying to find a physician with the most experience. Any information on the disease would be helpful. Thanks you in advance.

All the best,

Rona

[sharonforce]

Hi Rona

There is a similar group to this for the US Ovarian Cancer National Alliance: inspire.com/groups/ovarian-...

It might be worth also posting there for information specifically on the US.

Best wishes

Sharon

[Rona84 in reply to sharonforce]

Thank you so much, Sharon!

God bless,

Rona

[Mrs-stax]

Hi Rona my mum was diagnosed carcinosarcoma ovary 2a in March 2014 had debulking surgery then chemo unfortunately it has recurred , in USA I gather it's all insurance based so maybe helpful to talk to royal Marsden hospital in London I used to work there and professor Gore is excellent in regards to this disease he maybe able to help by liaising with drs in USA xxx my email is [e-mail] if you need to chat or any advice xx