CA125

[rosebud12]

cat scan was very good 3 months ago but ca125 has been staying around 130 to 120, on am on taxater has any one been good with numbers up for ovarian thanks

[HopeP]

My ct scan has been good but ca125 still raised. My onc says don't worry about ca125 as long as you're feeling ok! We still worry though don't we?!

[Caroline_W]

Hi Rosebud12. Doctors have told me in the past that the CA125 level isn't always a good indicator of what is happening with ovarian cancer, so I shouldn't worry about it. However I know from personal experience that it correlates well with what is happening with my cancer. When I am having a relapse, it's very high and vice versa. eg in September I was having a relapse of ovarian cancer symptoms (tiredness, big stomach, acid reflux etc) and the CA125 was over 1000. After a few weeks of chemo, I felt much better and was able to resume a normal life. The CA125 was down to about 200 and continued to fall with further treatment, but it's never been below 50 in the last 2 years even when I have been feeling quite well. So to answer your question, I can feel quite well with a raised CA125. I believe the normal upper limit is 30, but I haven't been in the normal range for 3 years. Hope this helps. Caroline_W