I was diagnosed with cancer last April after complaining about difficulty swallowing for around a year. Initially I was told that I would have chemo to shrink the tumour pre- op. The following week I saw the Oncologist who basically told me that an op was not an option and never would be. I had 6 months of chemo and horrendous side effects but it was apparently successful and the tumour had shrunk appreciably. Felt really well from October 2011 until April 2012 when I started having problems swallowing again. I had a scan in June and was told that although the cancer was active again it was still very small and could not be causing the problems with swallowing. So finally to the questions (Sorry to be so long winded this is my first time on this site)
1. Does anyone else have experience of difficulty swallowing that is not connected to the tumour growing?
2. I don't understand why, if the tumour has shrunk appreciably and is contained, why I can't have an operation; has this happened to anyone else?
3. I live in S Wales and we have no specialists in Upper GI I have asked to be referred and the Oncologist is arranging for me to see a specialist at University College Hospital London - has anyone else had experience of this hospital? Is it a good place to go or would I be better asking for a referral to the Royal Marsden - any advice on best place to go for latest treatments would be gratefully received