Just wanted to update on my progress. My initial biopsy result came back negative which I think had everyone shocked. Statistically that was an 85% chance of being correct and I had a re-scope by an actual consultant on Monday, and afterwards he gave no a 50/50 chance if simply having an oesophageal ulcer. It was quite hard to take as I'd come to terms with the initial diagnosis from the first scope, but sadly today the new pathology came back positive for poorly differentiated adenocarcinoma. Actually feel lower about this than I did this time last week as I'd made peace with the diagnosis but the false negative gave me hope.
My reading would suggest that this is a particularly aggressive form, and I now need to wait the weekend doesn't the results of the ct to see if it's spread. Laporistomy (or whatever it's called) now planned, and probably PET and I'm feeling really nervous.
Not really sure what to think now and my nurse specialist was very kind on the phone, but when it comes down to it my head was up my rear end once she broke the news and I didn't ask the questions I should have at the time. The poorly differentiated classification is making me nervous, yet here I am still able to eat anything I want to more or less (smaller bites and none slowly though ) but constantly monitoring no body for twinges and symptoms that might indicate spread. I've never studied my urine so carefully. Any advice or experiences gratefully received as ever.