Knowledge needed

[Ollyburr]

Sorry I missed this off...

RESULTS

CONCLUSION: The manometric profile demonstrated a normotensive lower oesophageal sphincter

with normal relaxation properties and no evidence of a hiatus hernia. Motility was peristaltic but weak

with 40 % classified as weak and 50 % classified as failed. The chicago classification was ineffective

oesophageal motility - a minor disorder of peristalsis. There was no improvement in contraction

vigour demonstrated with provocation challenges. Unfortunately, the 24-hour pH monitoring study

could not be performed because of Ms Burr's nickel allergy.

[Pepita933]

Sometimes it helps to look up what different words mean. Normotensive (never heard that word before!) means normal blood pressure in the LES (lower esophageal sphincter....sphincter between the stomach and the esophagus) it also says it contracts normally.. You have peristalsis, but it is weak. Peristalsis is the normal—natural movement in our esophagus that brings food down into our stomach. Think how your hand opens and closes that movement(like milking a cow) is how food is supposed to get to our stomach.No hiatal hernia.

So the result is that your esophagus’s motility study is that your esophagus is ineffective. (Not working very well!)

I don’t know what they mean by vigor demonstrated....

It sounds like you have achalasia, and that your esophagus is loosing it’s ability to bring food down to the stomach. Your LES is still opening and closing (that’s what I got) so, in order to have food go down into your stomach you have to rely on gravity. Eat upright.

I would guess that surgery might not be recommended yet. Trust me, you don’t want it until you have to have it!

Elevate the head of your bed.

I am not a doctor. I am not a medical professional. So my read of this report is just someone who has had some of your findings. I have no motility. I have had the Heller Myotomy. Nowadays the POEM is available that’s where they go and do the same kind of thing they did in the Heller, but instead of laparoscopically, they go in through your esophagus. MUCH better for you! Recovery would be faster.

I’m guessing eating is starting to be difficult for you. I don’t know if you are at the point where soups and protein drinks are your go to food.

Your report from my read, is scary for you, but not so bad (to me!). It’s all point of view! You will be okay. This disorder has happened before. Good gastroenterologist are familiar with this disorder. However, I would really suggest a specialist. This disease will continue to progress. I’m hoping a specialist can help you live longer in the early stages. Good luck!

Oh, and other people who read this, if I have goofed up please explain better than I and correct me.

[Ollyburr in reply to Pepita933]

Thank you for taking the time to read my post and explain. I found roughly the same as you but you have had personal experiences with this!

This kind of freaked me out...This disease will continue to progress. I’m hoping a specialist can help you live longer in the early stages. Good luck!

Do people die from this?

[Pepita933 in reply to Ollyburr]

The doctors say no, not really. I think we end up having other stuff that contributes to this disease. I had a normal EKG until after my myotomy. That could be coincidence. I’ve since developed IBS, and have added so many foods .I can’t eat anymore. I believe that my issues stem back to Sjogren’s and the neurological aspect of this disease. So even if you have Achalasia, like I do, yours doesn’t have to be (or present) like mine. You may have different things happen or not happen to you!