Thank you to all who replied to my first post.
I’ve been to speak to the surgeon and specialist nurse today with my husband.
Plan is 4 lots of FLOT chemo over 8 weeks, then 6 weeks respite before oesophagectomy.
Sounds easy!!!!!!! He said it was life changing and I believe it is but I’m terrified.
My main concern is how my husband will cope, he has Parkinson’s and I’m his carer. I never expected the tables to turn !
Sorry to sound so dramatic 😬
I would suggest you talk to Macmillan and see if they can help you sort out a care plan with the right people to kick in as time progresses. They can help with any red tape etc and it's good to have someone in your corner.
After the op you are not going to be doing very much at all for at least a few months. It also depends on how the chemo goes. I had a bad few weeks at the beginning and then apart from feeling very sick at the first week of each cycle I did well. The 6 week break to build your strength up and put on some weight I actually felt fitter than I had for years. We all react differently A friend of mine just walked through chemo. It's a good idea to get a plan B in place then you won't be stressed if you just need to rest for a few days.
So glad you have a plan and know what you are dealing with.
Hugs. Lizzy
Hi deeedals I remember the feeling so well it’s a frightening time. I didn’t find the chemoraditheraphy to hard to cope with. I found it was after the operation you will feel extremely tired and everything you do takes an enormous effort however things do improve albeit slowly. I,m now nearly two years on and on the whole doing really well there are hiccups along the way but you.ll get there . My husband also had health issues and I was always pretty fit so everything came as a complete shock and emotionally very draining. Look after yourself I know it’s a very hard time but you will get through it . Take care x
Hi deeedals. Macmillan also have a good site. And you can get help that way to as at the beginning I was on both sites good luck
Deeedals,
Do spend time on opa.org.uk/
Thats where you will get all of the information for oesophagectomy which is also freely used by other charities such as Maggies, Macmilan, CLAN et al.
Wish you all the best.
Post oesophagectomy (10 weeks ago) had dumping syndrome now experiencing chronic diarrhoea, for days on end.
How long is too long to wait for treatment to start
Husband about to undergo stomach cancer surgery
