My feeding tube

[Lildarlin]

I had a feeding tube put into my stomach about 4 months ago to give my ulcer time to heal. I received no instructions no equipment was just sent home straight after surgery. The only nutrition I get is what I eat by mouth. I have lost down from 115 to 85 during this time. Seeing that the tube is just in my stomach it's not serving any purpose which I voiced to my Dr but he is refusing to take it out. He said I would die if he did... I don't understand that when it's not doing anything for me except leaking all the time from the incision.. what do you guys think of this and what should I do?

[pegcburke]

I'd suggest switching doctors! That's all inexcusable! You need nutrition and calories and training on how to use the feeding tube, as well as advice on the best diet to use with the feeding tube (canned liquids, or can you use a blender to make your own liquid diet?).

[kiddy]

Hi phone the dietician at your hospital they will tell you ,demonstrate what to do. They shouldn’t of let you out without knowing. If you don’t know dietician phone the consultants secretary.

Best of luck

Debbie

[peaches2016]

I have ajeg tube in which is going into my jejunum ,this was put in during a failed ivor lewis op .surgeon said itwas there incase my ng tube failed the jeg tube has not been used but i have to flush it twice a day ,i know they couldnt take jeg tube out straight away but would have to leave it in for 7/8 weeks until the stoma matured ,dont know if that is any help to you .if yu are not getting the required nutritional needs you need to get things sorted woth your tube

Regards Donna

[Agl19 in reply to peaches2016]

What is a failed Ivor lewiS?

[Agl19 in reply to Agl19]

I had a ivory Lewis in August 18 and am still feeling pain n discomfort

[peaches2016 in reply to Agl19]

Went in to have ivor lewis operation but the surgeon had to close me back up because tumour stuck to pericardium

[Fizzy35 in reply to peaches2016]

Oh dear you must be worried

Try not to be

Deal with now

Friends/ Family/ colleagues/ specialists

Thinking of you and sending comfort x

[Tommy12]

Hi,as already mentioned speak to a nutritionist who will show you how to use it. I had one for 6 months and it saved my life. Good luck

[grandylynda]

Demand a second opinion

[Guitarhero]

Please take the advice here.my husband had a feeding tube for 6 months after his Ivor Lewis op and it kept him alive,the dietician was the best person who helped us through the whole feeding tube nightmare.

[Fizzy35]

Well did you not get instruction on dealing with the stomach tube and how to clean it and put liquidised food in????

Don’t know where you are from but you need phone your specialist nurse/and or your dietician

SOON SOON