Terrible week : My partner has been in... - Oesophageal & Gas...

Oesophageal & Gastric Cancer

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Terrible week

Murph04 profile image
11 Replies

My partner has been in hospital all week after deteriorating they have now told us his cancer has spread and is aggressive and have told us he only has months to live we are both completely shattered after he did so well after his op we are looking at alternative therapies and the CBD oil has anyone tried this with any success we just feel we need to something to fight this horrible disease

Angie

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Murph04 profile image
Murph04
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11 Replies
Redandover70 profile image
Redandover70

So sorry to hear your news. I take hemp oil and turmeric with black pepper. I have recovered from my op and told I am cancer free but I have read about the successes especially with turmeric that I'm taking no chances (there is a Facebook page facebook.com/groups/turmeri....

Sometimes in life the impossible becomes the possible, I so hope this can be true of your partner.

Christine

Laverock profile image
Laverock

My heart goes out to Angie, we are in exactly the same situation, my husband's cancer has spread and is aggressive, we have no idea of knowing how much time he has.. I've posted this already but you may take comfort from the fact that you are not facing this alone.

His surgeons told him after his IL op last October and radical chemo that they had completely removed the tumour and the affected lymph nodes, we were so relieved and happy and he had braved the awful treatment and operation, we would have done anything to be cancer free, so we faced it all with hope.

Then there came a sudden change, he found great difficulty eating and became extremely tired, 2 GPs could find no cause and eventually I took him to hospital where a chest X-Ray showed pleural effusions and a CT scan showed the cancer had spread into his liver and a rib, and also he had a kind of obstruction, his stomach was bloated like a balloon, No wonder he was feeling ill and uncomfortable.

Eventually we were given the terrible news of the cancer spread. Getting the diagnosis last year was a terrible shock but we coped with it as we had hope, but this is different, there seemed no hope. He was offered chemo but refused it, he couldn't go through with it again.

He came home from hospital into my loving arms and has told me he wishes to stay at home for as long as possible. I managed to get some care from Marie Curie and the District nurses, we have good family and friends support, so we are making the best of it taking it a day at a time.

I feel we do have hope each day that he will have a comfortable day and a peaceful night. We are making the very best of the time we have together, albeit he is quite weak, but we can manage to take him to the nearby park in the wheelchair passing our pond which is full of mating frogs at the moment. We have time to talk about how happy we've been these last 5 years, we look at film I've taken on holidays, and I've been taking film recently so that I can have that to look at later for memories. A friend whose husband died last year said she longed to hear the sound f his voice.

He's been able to have the time to settle his affairs so his mind is quite content for me and our families' futures. We are blessed to have this precious time together and are aiming to enjoy it as much as we can having accepted our fate.

Best wishes to you, Angie,

Fiona X

Murph04 profile image
Murph04 in reply toLaverock

We are taking him home today but he is very unwell hoping we might still get a small improvement when he is in his own environment we are getting married tomorrow as it’s what we both want just can’t comprehend how quickly things can deteriorate not sure there is time to do much but just want to cuddle him in bed and let him know how much he is loved

Angie

jaydee54 profile image
jaydee54 in reply toMurph04

My poor, poor love. I know exactly what you’re going through, my husband passed away last Monday teatime. He had chemo, surgery and more chemo; he was given the ‘all clear’ in December, returning to work in January, only for it to come back in February. It’s all to cruel and unfair.....this morning I went into the shed he’d built in January, he was due to retire in July, and wanted a workroom........I feel as though I’ve been hit by a train. You cuddle your man and let him know how much he is loved. My heart really does go out to you. Take care of you both. XX

Murph04 profile image
Murph04 in reply tojaydee54

Thanks four message unfortunately he came home at 6.30 pm and died at 3am so the wedding didn’t happen and it was so quick which is a god send for him but such a shock like you i feel like i have been hit by a train and feel so lost i’m sure we will find the strength from somewhere but it will be a tough time

Take care

Angie

jaydee54 profile image
jaydee54 in reply toMurph04

This is all such a horrible and surreal time; at least you know he was comfortable and in your home where he wanted to be. I will try and private message you. Take care of you. X

Npride profile image
Npride

Hi Murph04. I am so sorry to hear the news. Nothing can prepare for this. The 3.5 years my husband fought with 4 lots of chemo, 5 weeks radio, an Ivor Lewis, emergency bowel surgery and emergency stent from a giant kidney stone kept me on my toes. I grieved the whole way through, yet somehow he found the strength and resolve to fight some more. Yet as soon as we had bought our house (we lost his mum in 2014) he knew myself and the children would be safe. He should have come home on May 2nd 2016 a Tuesday all be it with 2 x carers 4 x a day and not being able to get out of a bed on his own, or even stand whilst weighing just 6 stone. However on the Sunday, I found out he wouldn't make it, and I lost him on the Monday. I had many plans I wanted to do before, but he was just too ill - a family portrait (I had one painted from various photos after) and writing birthday and Christmas along with other celebration cards for the children as they became older, he could still send them a present and a card - but he never had chance. You can still remain hopeful of course and if he wants to he can of course try other treatments. We wanted to try immunotherapy but he was just to ill all the time and didn't have the chance as the end was so sudden. I would though ask him what he wants. My hubby had been so ill for so long, I couldn't ask him to do anything and it was in a horrible way a blessing to let him go. Laverock says about videos, we took hundreds of photographs for my children (they were 7 and my youngest was just 3 at the time) so will probably never remember him. We took some video, but no where near what I should have done. The thing I did do, but forgot was record him telling the children a message about his life, who he was, what he liked, that he loved them etc. I found it over a year later and to hear his voice again was so amazing, I clearly sobbed the place down. My advice would be, do everything you can to prepare, talk about everything you want to, take the pictures, the videos and the sound recordings. Use this precious time to do everything you would like to, whilst still holding the hope and researching. Wishing you all peace. xx Carrie

Murph04 profile image
Murph04

Thanks for your reply i have told the doctors i just want him home so we can be together they don’t like it but i don’t want him to die in that horrible place where are you maybe we could meet up xx

It is shattering news, and I do send my very best wishes for you.

The priority is to make the best of whatever length of life you have together and to make sure that he is given proper attention for comfort and quality of life. Contacting a hospice, sooner rather than later, can be a very valuable thing to do, because, in general, they are better at managing pain control, organising patients to stay at home for as long as possible, and dealing with both your needs at a difficult time. There may well other therapies there that may help.

Contacting a hospice is not giving up hope as such, but it will tend to help promote treatment that is helpful; having to go via the local A & E is not always the best option if there are sudden emergencies.

It is a really difficult thing to have to cope with; but you will find sources of strength from unexpected places.

jaydee54 profile image
jaydee54

My poor, poor love. I know exactly what you’re going through, my husband passed away last Monday teatime. He had chemo, surgery and more chemo; he was given the ‘all clear’ in December, returning to work in January, only for it to come back in February. It’s all to cruel and unfair.....this morning I went into the shed he’d built in January, he was due to retire in July, and wanted a workroom........I feel as though I’ve been hit by a train. You cuddle your man and let him know how much he is loved. My heart really does go out to you. Take care of you both. XX

Gmnort profile image
Gmnort

I've just joined this website. My husband is getting a oesophageal stent placed next Thursday. cancer was detected in January (also in stomach) and at the time decided on the Breuss diet, Fas I've beaten cancer in 1992 that way. for four weeks he was getting better, stronger and we thought we'd win when things took a turn - excessive internal bleeding from stomach ulceration - and he was rushed to hospital. Has been there ever since on tube feed (through nose into lower stomach)

He's very weak, can just about sit up for 20 minutes it's a huge effort for him. Tube feed is only safe for six weeks. Hoping that with a stent he can come home and we could help with as many gentle holistic cures out there as possible.

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