I was away in Tenerife a few weeks ago & felt so well,swam three times a day,walked,went out every night.Felt absolutley great. Apart from the tingling skin which I think was the meds reacting to the sun. Never felt better,came back full of life did loads of things,kept walking etc..... Even thought the docs have it all wrong I'll take myself off the meds. Then last weekend I took my family to blackpool,15 of us,I had planned it two years ago. I was very positive about it even though it is a seven hr drive from where I am now staying. It really was full on,the four grandchildren are very young & full of fun. We went swimming twice,a whole day at the fun fair,which was brilliant. Had a long walk along the front seeing all the lights,it was magical. It was four busy fun filled days & nights. Got back home & youve properly already guessed what Im going to say,I couldnt get out of the car & its been down hill ever since. Tired, swollen & very painful joints,I couldnt even walk on tuesday, when I get like this I feel sick to,like morning sickness & yesterday my chest felt tight & going up the stairs made me breathless felt very unwell. Anyway Ive been taking it easy ever since. I know I should be grateful that I could do all those activities when many of you lovely people on here cant & I dont regret going but boy am I suffering now. So I take my hat off to you all who feel like this day in & day out. Xx
Hi all,its a long time since Ive written on here & I ... - NRAS
Hi all,its a long time since Ive written on here & I wish Id had sooner.
Thanks cathie,Im feeling much better today. Its still quite new to me & cant believe how ill I felt in such a short space of time,there was nothing I could do,just sit it out & wait. X
I overdo it one day and you can guarentee i will pay for it so your not alone. You must rest and recuperate. Hope you soon feel back to your old self.xxx
Hi caza glad your feeling better this morning. I felt the same when I overdid it early this week just reminds us to Pace ourselves, hope you stay well
cris
Ditto had a good couple of months was normal and felt invincible stopped meds then came back down to earth with a bang! Boy am i paying for it back on the meds but still not yet back under control and got more problems than ever..
Just sit back now, rest, rest, rest and dwell on the happy times you had over last few weeks, it will come again
Judith xx
Hi Caza, Great to hear that you are not letting this disease get you down, and that when you are able just getting on with life and enjoying it. I'm much the same, have really good days then collapse, its really annoying because when you haven't got pain and stiffness and fatigue we think we are normal and can continue to do normal things, then RA raises its ugly head and swipes us, there's nothing we can do to prevent it or cure it, we have to live with it. Thats what I like about your blog, you are LIVING! long may you enjoy good days and you soon get your strength back.
many blessings Carol
Ive learnt through sad experience that life can be very short. Intend to go for quaility when I can. I'm going to jet ski next year for the first time ohmigod, i just hope that everyone stays indoors!!! X