Hi there,sorry its taken so long.The last time I wrote I was getting worried about my sons wedding & shoes etc.....

[Caza]

Well although I visit the site everyday,so much has happened since the wedding that I just havent had a chance to write. The wedding was great & I lasted the day & evening with a new pair of shoes still on my feet!! I was so tired the next day & went to bed at 4 in the afternoon & didnt get up until 8 the following day.this is a person who just 9 months ago was a really bad sleeper & coped on just 4-5 hrs sleep a night. I think with everything that has happened to my body over the last yr the tiredness or as someone else on here said feeling have dead,has been the hardest thing to cope with. Its more than just feeling tired isnt it,which is hard to explain to others.

I started my meds hydroxy,at the begining of august,(I didnt want to start them before the wedding) after three weeks I was covered in a rash,but oh joy I could hold a cup in one hand & open the fridge,the pain was in the background. The rash didnt last long but the lack of pain has & my energy levels are back its brilliant, I feel like me again & yesterday I actually put on a pair of shoes from before with no problems,my feet had balloned & would go into spasm. No night cramps or sweats,I just cant belive the difference. Ive been back to see the consultant,who says the tests are still inconclusive but with the meds working so well that it is almost certainly RA. Hes run some more tests and see him again in december.

I dont really understand all thats happened & why its worked so quickly or so well & not sure how long it will last but for now i dont really care just so pleased im feeling so much better. I wish it was as easy for all of you as it seems to of been for me. I do keep up with you all even though I dont write & I know its so hard for many. Take care caza x

[sylvi]

Caza, i am so pleased for you. It is great when drugs work for someone like yourself. I am glad the wedding went well for you,you will have to post some pictures of you in your wedding outfit and shoes. love sylvi.xx

[Caza]

Not sure how to do that yet! Love your hair sylvi, you are quite a remarkable person. I read your blogs daily. How you keep smiling I dont know. Keep them coming. X

[sylvi in reply to Caza]

caza i don't have a choice but to keep going,i won't let this disease be the death of me. Thanks for your comments on my hair.xxx

[Hidden]

Good to hear the wedding went well and you were able to last out the time. Also that your meds appear to be working for you.

[Hidden]

That's great news on all fronts Caza - long may it last! Tilda x

[Caza]

Thanks georje,& thanks Tilda I hear your doing well to. I intend to up the game as well & join a couple of classes, I walked 25 miles last week,Ive been struggling to walk one mile of late if at all. So hope it continues. Caza x

[Treesha]

Well done Caza i am thrilled for you, so glad your meds have kicked in and the wedding went well with your shoes! Xx

[Caza]

Thank you Treesha,i cant beleive my luck,long may it continue. I still have background grumbling in my joints & have gone back to very little sleep but im not complaining, i feel just great. Caza xx