does anyone have 'adult onset disease' and addisons d... - NRAS
does anyone have 'adult onset disease' and addisons disease?
Not sure what your question is as most people have adult onset RA.
I have a friend who was diagnosed with Addisons, he almost died due to repeated misdiagnosis, ended up in a wheelchair then hospital ICU, now he's on correct meds he's doing ok but still quite poorly.
Beth x
Thank you, my Addisons isn't the problem at the moment as my Steroids are very high (90mg a day) its ' Adult onset stills disease' due to the pain I'm also in a wheelchair most of the time Parkie
Hi
Yes i have onsett stills disease and have had for just over 7yrs,its a nightmare to controll.I am on some many tablets i rattle when i walk...
How long have you had stills?
E
How does adult stills differ from RA? It sounds pretty lousy to have both Addisons and Stills I must say poor you you have my sympathy. TTx
Hi Tilda T, 'Adult onset stills disease' comes on as an adult. It is a childs disease but was discovered in the 1980's that adults can have it. Its chronic RA with the addition of extreme fatique,high fevers that return to normal quickly,salmon- coloured rash,fluid around the heart or lungs(I've had my lungs drained numberous amount of times). It also mimics an infection, so have to rely on CRP count instead. Hope this helps, there is lots more but these are the basics. Parkie x
Sounds awful poor you Parkie - makes me feel very lucky just to have plain old RA - and quite mildly too. Take care please Tilda xx
Hi, the worst thing is the loss of my independance, my daughters have taken over my role as mum and relying on them for almost everything. With time my mobility may improve, fingers crossed. Take care Parkie x
Hi all
We have an article on this for anyone that's interested in reading it, as well as a patient story:
nras.org.uk/about_rheumatoi...
Kind regards
Victoria
(NRAS Helpline & Information Coordinator)
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