Is anyone on Simponi? Apparently a monthly injection anti tnf. Have heard a few people prescribed recently.

[Gina_K]

[Tricia-P]

hi Gina, no not heard this one is new to me. By the way the Humira is fantastic it seems to have kicked in straight away just like it did when I first had it. The Rheumy Dr wants me to stick to 1 injection every 2 weeks I was having an injection weekly as the Humira wore off after 8 /9 days it was like my batteries were running out.lol So lets hope it lasts as it should as its most unpleasant being up and feeling really good then in crap order.

Are you looking to change your Humira to something else?

xTriciax

[Hidden]

Hi Gina, have heard about it but not much sorry and don't now anyone on it either. Have found a good site with information about it (below is the link) sorry if you've already looked at it.

simponi.com/

Take care

Mandy xx

[Gina_K]

Tricia, Glad Humira has kicked in immed, you hear stories about meds not working twice. It has been a life saver for me, I hope it keeps working! I know there is no cure, but from my point of view the big H injection is the closest thing, make sure you warm that baby before shooting it in, God bless the yellow stuff! (for us that it works for anyway) I think Simponi the new big thing!!!

[Hidden]

As long as they keep bringing new ones out ( bit like anti biotics ) we shouold be ok. I havent even started mine- enbrel ( like lyn `s been on) in next week or so counting down the days now . OMG what if it doesnt work!!! Simponi here I come.

Take care all

fiona xx

[Wonkywarrior]

Hi

I have had this one, its new and I tried it last summer.

It did have a quick and very positive effect on the RA.

Sadly, I couldnt tollerate the side effects and ended up in hospital a few times.

I would definately recommend it, not least as it is the only anti- tnf that doesnt sting on injection site, plus there is the very lovely design of needle which means the wonkiest warrior can use it.

Jennifer

[alice10782 in reply to Wonkywarrior]

Hello I know this is an old response, but may I ask what your side effect from the symponi were and how it landed you in the hospital? Thanks so much, Lisa

[Hidden]

Hi Gina

Simponi was only recommended by NICE last Friday, 13th May, nras.org.uk/campaign/press_...

The only people who will have had it so far in the UK will be those on trials, or very special cases such as Jenni with systemic disease and severe responses to other drugs. Not sure whether Ireland is governed in the same way as the UK. Seemingly not if you know people who have already been prescribed Simponi.

Lyn x

[Gina_K]

Lynn,

Not sure, but will keep my ear to the ground. I knew that re NICE. Am sure same rules govern most of Eurozone medically speaking. We sure don't have much money to be spending on expensive drugs at the moment! Humira is made in Ireland, maybe thats why I was put on it, Thats really unlikely is'nt it? Embrel seems to be much more popular in U.K.

[Hidden in reply to Gina_K]

Perhaps not that unlikely! So much of it is either political or economic these days! I think a lot of it comes down to the choice of the rheumatologist; they all seem to have their particular favourites!

As long as the drugs keep working for us that's all that ruddy well matters methinks!!