weird mouth symptoms on Sulfasalazine: Has anyone... - NRAS

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weird mouth symptoms on Sulfasalazine

Charlongo79 profile image
7 Replies

Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!

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Charlongo79
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7 Replies
Silverpixie profile image
Silverpixie

I had this. Apparently a rare side effect. Sense of taste did come back slowly after I stopped taking it.

Charlongo79 profile image
Charlongo79 in reply to Silverpixie

Really? Interesting. I wonder what I should do???? Wonder whether I should carry on and hope it goes away. I don’t really have any other alternatives as the other DMARDS are no good with my other health conditions and medications. Not a great thing to,have around Christmas time though!

Haz58 profile image
Haz58 in reply to Charlongo79

I'm on it. Have had red parts on my tongue but no problem with taste. I never thought it was the sulfasalazine, maybe it is! Can you ring your rheumatology department?

13Lab profile image
13Lab

I developed erosive oral lichen planus( which is rare anyway) whilst taking sulphasalazine .I had no loss of taste but very sore mouth. Stopped the drug. and much improved…

Tatiana13 profile image
Tatiana13

I have been on suplpa for 2 years and mouth ulcers and sore throats seem to be a frequent occurance

BMCV profile image
BMCV

I completely lost my sense of taste when on Sulfa. It was very depressing! When I stopped taking the meds it took nearly 2 months for taste to return

carbeck profile image
carbeck

Hi i'v been on sulfasalazine for years and was also on them about 30 years ago the first time I got mouth ulcers but they eventually reduced and then I would only get them now and again. When I went back in them I didn't get any for a while but I just get them now and again. Hope your discomfort clears up soon

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