Ra recently diagnosed

[remission]

any advice in magnetic brackets or anything that will mark it easier to deal with

[Gnarli]

Hello and welcome to the club nobody wants to join. Unfortunately, there's no evidence that magnetic bracelets have any therapeutic effect. However, if you like the look of them or believe that they will help you they won't do any harm.

[remission in reply to Gnarli]

well, thankyou kindly for replying

[nomoreheels]

Hiya remission, welcome to the NRAS forum. I'm sorry your diagnosis has changed. As Gnarli says there's little medical evidence to support magnetic bracelets to help ease symptoms of RD, only medication can modify it's course. One or two here in the past have noticed some magnets can help with OA symptoms, but as you know that's quite a different condition. If you fancy trying it they won't do any harm, on,y to your pocket! Actually some magnetic bracelets I've seen are quite nice.

I take it you're not in the UK? Whilst overseas members are very welcome you may find some things differ, treatment, med names & such, although generic med names will always be the same. We're always happy to compare & learn! The following link is from this charity so UK related but you may find it a helpful general resource nras.org.uk

I don't use CBD. Here in the UK medical doses are only legal (prescribed) for a few diseases. For the rest of us it's a bit convoluted but as long at it contains less than 0.2% THC it's legal. There are many online & some high street shops which sell it so there is widespread availability. My anti inflammatory is etoricoxib, which I know was withdrawn in the US. However I do have annual checks to ensure I’m heart healthy to remain on it & do take a lower dose than I used to.

I hope you enjoy being here & your username becomes your reality in the not too distant future!

[remission]

thankyou for your reply and information, my rheumatologist put me on an aggressive start for one month, I was taking 400 mg of hyroxychlorquine each day and then after a month down to 200 a week, this was to get the disease under control before starting a maintenance dosage; I don’t know why, but I certainly felt a lot less achy before I started the medication. Currently spending time accepting things as they are, the old me was always trying to get ahead of it, to which I found more stress more pain. I’m still able to do things, so that is great.

[nomoreheels in reply to remission]

You’re welcome. My first DMARD was also hydroxychloroquine 400 mg/day, only because I was diagnosed very early with little joint involvement/erosions. My dose wasn’t reduced though, I remained on 400 mg. This is an example of differing therapy because it wasn’t considered aggressive treatment. HCQ was prescribed because of early diagnosis, I wasn’t bad enough to need the big gun gold standard methotrexate so it was decided HCQ, along with a short course of corticosteroids & 2 NSAIDs, would be enough to bring control, & it did for a year. Nowadays I am on MTX, along with an NSAID, pain relief & I’m tapering steroids which I’ve been on for 9 years.

You seem to have the right attitude of RD & it’s brill you are able to do what you want. I hope it continues. Stress & RD don’t mix so you’re learning quickly. 😊

[Fruitandnutcase in reply to remission]

If you’re taking hydroxychloroquine be sure to have your eyes tested regularly. I have an eye test and an OCT scan of the inside of my eye done every year and I’ve also got a thing called an Amsler chart that I use every now and again. If you are taking hydroxychloroquine and notice anything odd about your vision get checked out straight away.

[remission in reply to Fruitandnutcase]

thankyou, my pharmscist mentioned this also, that you need eye exams every year and blood work

[Sheila_G]

I think you would be wasting your money to be honest.

[HappykindaGal]

I had one for years that was a gift. Wore it because it was beautiful. It did eventually change to a weird colour so binned it 😂😂. However, it didn’t make any difference to my RA. Have to try these things though as you never know if you’ll be the lucky one it works for.

[smilelines]

It was really hard on me when I got sick and I felt like life was almost over for me. But things got better and now everything is normal again but in a new way. Hang in there.

[Esmereld]

There are loads of articles that you can read on the internet. Nothing conclusive that I’ve ever found. I wear one with eight magnets. Doesn’t do anything noticeable 😂 . Pretty though. The only way to find out is to wear one. I have a friend that wears a copper bangle. Couldn’t be without it!. 🤷‍♀️.

[Hidden]

Don't use them anymore. Found making sure to drink plenty of water through the day helped better. Some people might say they help.

[oldtimer2]

I was part of a trial. Not that it was really a double blind trial as it was pretty obvious which were the magnetic bracelets and which not! Mine were magnetic, but didn't make any difference to me. The trial conclusion was that they didn't work.

If you do use them remember to keep them away from computers.

[nomoreheels in reply to oldtimer2]

Credit/Debit cards too.

[remission in reply to oldtimer2]

thanks everyone for your responses, always good to hear from people with experience behind them

[Evie3]

personally didnt help me…I bought an expensive bio…something or other. But it may work for you.

[Happy5]

Hello Remission sorry you've had to join us but you're most welcome as you can see.

All I'll say (others have given you lots of helpful advice) there's lots about the physical needs, but little about the grief process we go through when first diagnosed. I did do a goodbye old life hello new life. This along with lots of research about my treatment helped me feel in better control of what was happening in my life.

There are masses of alternative options offered, and kind hearted ones will suggest all sorts of things, which rarely work.

If you think about it if all these suggestions worked why would they not be given to treat the ailment?

Anyway in the end we're individuals so you'll decide what's best for you. 🤗

[remission in reply to Happy5]

thankyou for your kind words, so very true about the grief process. I moved rather quickly thru that only because. About four years ago I was diagnosed with polymyalgia Rhuematica, and sadly had already accepted letting go of the old life and accepting what I could and could. Do in my new life. during that time I was willing to try everything and anything to relieve the pain and concluded pretty much what you had said, if it was out. There, someone would have already found. It. I did find a few things that were suggested by my group. That helped a bit. I’m a real fighter, so I’ve been mostly working on spending my time and energy working on my mind to calm it, as one thing I did discover, stress aggravates the body. At any rate, that is my story, just wanted to share as I find it helps to connect with others with a similar story. I hope we all do the best we can with the hand we have been dealt.

Much love

[Happy5 in reply to remission]

Well put onwards and upwards m'dear