RA

[jacbub103]

I decided when I was diagnosed with RA in 2016 to take control as it seemed to me my doctors and Rheumy consultant and now a Neuphrolgy consultant do not inform each other of anything, so I contact them myself. I think it’s a sign of the future for the NHS .

[rabbits65]

Yes . I think you are right . Good thinking. The left hand doesn’t know otherwise what the right hands doing .

[Doughnut61]

Your right, it feels a constant battle, I get somentally drained with explaining over and over again and chasing, it really is a battle and so wearing 😩

[Pippy25]

Sadly it can be the case and going to different hospitals sometimes under different authorities can also add to the lack of communication. I have found over the 20 years since I was diagnosed that we become the 'gatekeepers' of our health and all the information and it can get exhausting, frustrating trying to 'co ordinate' and convey this to people who should be communicating with each other as their line of work. I know this is not the case for everyone and when you have a team of people working and communicating together for the patient it must feel so good. Sadly for some what you are experiencing was the case before Covid, but Covid is now used at times as an excuse. Take care wont you and sending some supportive wishes to you.

[Love2camp]

Totally agree with you Jacbub. We have to become experts in our own health and learn that to get the right treatment we need to have good knowledge and to be vocal.

[helenlw7]

The rheumatology and lung departments I’m under are very good, but my husband has glaucoma, and the opthamology department in the same hospital is very disorganised. I always have to ring up and book the next appointment!