Increase of Lyme antibodies : I haven’t been feeling... - NRAS

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Increase of Lyme antibodies

rd_8930 profile image
5 Replies

I haven’t been feeling well. I started back in October with terrible headaches. Everyday. Body pains, fatigue, dizzy spells, sensitivity to light and sounds. I’m still feeling sick. Fainty feeling. I’ve been tested for Lyme two times. LYME ANTIBODIES W/ REFLEX TO CONFIRMATION. My first blood result was late November was .07. And this week I got tested again and I am .23. These antibodies are increasing. Could I possible be infected with Lyme? I went hiking many times in the moment of September. Suddenly I started with the headaches in the middle of October. I also have a high C Reactive Protein of 20.1 mg/L.

Doctors don’t prescribe antibiotics because if it’s less than .90 it’s consider negative.

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rd_8930
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KittyJ profile image
KittyJ

I suppose it’s always a possibility but I wondered if you’ve spoken to the people on the Living with Lymes disease UK Healthunlocked forum? They might be able to help you more as this forum is for Rheumatoid arthritis. I hope it’s not and you get some reassurance there.

sylvi profile image
sylvi in reply to KittyJ

Good answer KittyJ. xxxx

nomoreheels profile image
nomoreheels

I wonder, do you live in the US? Whilst we do have Lyme Disease it isn’t as prevalent here. Either way, as it's what you're being tested for I would pop on to the site Kitty suggests. Whilst it's only a small group they will have more experience of the tests & results you're asking about than us with Rheumatoid. There's also a dedicated Lyme Disease charity in the UK started by two women who were diagnosed with it, maybe ask on their Facebook page, or have a look through their site lymediseaseuk.com/

Best of all would be to ask the medical professional who ordered the tests, he has all your information & is in the best position to answer all your questions. We may not give the correct info for you with not being medically qualified or having your full history, your MP does. I hope you get the answers you need so you have a clearer understanding of what you'll be facing, & of course treating to make things better for you.

nomoreheels profile image
nomoreheels

I forgot, another reason I was asking if you were in the US was because there are more dedicated charities & organisations for Lyme. Just some… lymedisease.org/ lyme.org/ lymediseaseassociation.org/ lymetreatmentfoundation.org/ globallymealliance.org/ As you see far more about it in the US,

helixhelix profile image
helixhelix

Do you live in an area that does have Lyme? And did you notice any tick bites or rashes? And have your doctors discussed other possible causes?

I believe the test you had was the most sensitive one, and at O.23 is still significantly below the range that is considered equivocal 0.9 and then positive 1.09. So perhaps try to talk to your doctors about other possibilities?

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