Morning everyone. Thought you would find this article on Long Covid interesting. Lots of cross over with other energy limiting conditions such as RA and Fibro.
https://www.theguardian.com/commentisfree/2021/dec/22... - NRAS
https://www.theguardian.com/commentisfree/2021/dec/22/long-covid-pandemic-support-funding
8 Replies
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The lady in this article has my full sympathy, it does sound very similar to RA and fibromyalgia as you say.
1 small silver lining for us is it is getting funding for research which may benefit us as it does sound an immune based issue. Not very helpful perspective for people though with long covid
• in reply toMarionfromhappydays
I agree, all the extra funding will benefit us all I think in the longer term. In terms of raising awareness and understanding if nothing else.
Certainly makes interesting reading.
Interesting article; I’ve often thought long Covid sounds like an auto immune response. Poor woman, really feel for her, it is a shock when you find you can no longer do things you took for granted. I felt like I’d aged overnight when I first got this. How disappointing to be labelled neurotic too in early days. Thanks for posting.
• in reply toKerensa56
Yes. I still have people who don’t understand, despite being 11 years in, and fully explaining everything several times 🙄🤪. As far as the medical profession go, being female still seems to be a deciding factor in the labelling department.. 🤯. Ho hum.. on we go…
It’s a major life change. I firmly believe counselling should be offered or suggested as soon as any diagnosis is received. This is life changing stuff.
Kerensa56• in reply to
Agree on all counts 👍☺️Nothing annoys me more than hearing my own rheumatology dept refer to it only as ‘arthritis’: it’s so much more and sadly the only word people hear, yeah I know, preaching to the choir here 🤣
I agree. I could have used counselling as I grieved my former life. In fact I probably could use some now, too.
• in reply tosmilelines
Get yourself a referral x It really helps xx
