Hello all, I’ve been very lucky that I have been well for the past couple of months - despite not being on any meds - I didn’t get on with Mtx tablets or injections or sulfasalazine, so have been managing with prednisolone, that I stopped taking a few months ago. I’m now waiting to try biologics.
Then suddenly - the fatigue!! I sleep for 11 or 12 hours if I can and still feel like a dead weight during the day. Is this the start of a flare? Or can you have a flare of fatigue? I’m so confused why this has suddenly happened and don’t know how to cope. I work full time and am a single parent but all I want to do is sleep or sit on the sofa.
It could be that Prednisolone gave you a false sense of wellbeing as its a steroid and reduces inflammation and can boost energy, but at a cost. Depending on how long you've been taking it, it can be advisable to reduce slowly over time(taper) to give the body time to adjust. It might be worth chasing up the wait for biologics but they don't work straight away and it can take a few weeks to really get in the system. We can't give medical advice but I think I'd ask for a steroid injection to help until the biologic kicks in. Best of luck and its such a shame that everything is taking so long now.
Thanks I think you may be right. The steroids have worn off 😞