Hiya im very pleased ive been offered a new drug Upad... - NRAS

NRAS

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Hiya im very pleased ive been offered a new drug Upaducitinib (rinvoq). Just asking for comments if anyone else has tried it ,as its a newbe

Ninnin67 profile image
Ninnin67
β€’14 Replies

Rinvoq

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Ninnin67
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Moomin8 profile image
Moomin8

Hi, I am really pleased for you 😊I haven't had this though, so can't offer any advice - sorry.However, I wasn't allowed to have the choice of starting it 'due to Covid.' πŸ€·πŸ»β€β™€οΈ I now have to have Rituximab infusions because I've failed on 2 injectable biologics.

I am interested on any replies you receive though πŸ˜„

Bluegrapefruit profile image
Bluegrapefruit

Hi! I’ve been on Rinvoq for about 5 weeks now, alongside methotrexate and hydroxychloroquine. It has definitely had some impact on pain and swelling but seems to be a bit of a slow burn for me. Hoping it will continue to build. Have just started tapering steroid again so will see how it all balances out over time. Good luck with it - I believe that for some it can work really quickly.

Anniebl24 profile image
Anniebl24

Please post updates as really interested.

Green230461 profile image
Green230461

I am on baricitinib and that has worked well after three months. Good luck πŸ˜‰

Brilliant pixiouchy x

Knit12 profile image
Knit12

Just about to start this drug so interested in how you are getting on with it

β€’ in reply toKnit12

Hello Knit12 I've have recently started Rinvoq June 28th to be exact I havent had any side effects ,and for the first time since my diagnosis just over a year ago with zero negative rheumatoid athrites and trying other various medications that sadly didnt work for me I can actually say I've never felt so good ,fatigue gone, pain and swelling gone I feel normal, hope it works for you all the best

πŸ˜€

Knit12 profile image
Knit12β€’ in reply to

That is so wonderful to hear. I am a longtime of RA and was on sulphasalazine for almost 20 years when it stopped working. This will be my 10th drug in 2 years of having terrible flare ups and side effects so I’m hoping for a miracle. Thank you so much and I hope you continue to feel well x

β€’ in reply toKnit12

Hello I wish you all the best and hoping that you have the same great results that I'm having at the moment with rinvoq

Knit12 profile image
Knit12β€’ in reply to

Finally got the drug and been on it for 2 days. Today I actually woke up with no stiffness in my hands although still stiff in shoulders and ankles, but so far so good

β€’ in reply toKnit12

So pleased for you 9 weeks for me I can actually say I feel normal, still have stiff hands in the morning but no near as bad o sometimes forget I have been diagnosed with RA πŸ˜€

Knit12 profile image
Knit12β€’ in reply to

That is so good to hear, I am delighted for you and I hope it is the same for me. Did you have any side effects at all? I am aware of dry eyes, dry throat and dry nose in the mornings but easily fixed with drops in the eyes and a drink of water.

β€’ in reply toKnit12

FINGERS CROSSED FOR YOU , ONLY THING IS THE DRY EYES IN THE MORNING BUT GOT INTO THE HABBIT OF PUTTING EYE DROPS IN BEOFRE I GO TO SLEEP GOOD LUCK KEEP ME UPADTED ON HOW TO GET ON IN A FEW WEEKS

Wooden_shoes profile image
Wooden_shoes

Rinvoq is great for me, no issues for me (6 months)

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