Methotrexate and hair loss: Hello everyone, I'm fairly... - NRAS

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Methotrexate and hair loss

Linysaurous profile image
63 Replies

Hello everyone, I'm fairly new here and wanted to ask if anyone else experiences hair loss? I'm putting it down to the MTX, which I've been using to great effect in all other respects for the passed seven months, so I wouldn't want to change that. But I was wondering if anyone knows of any magic potions to stop the hair loss altogether or at least thicken up what I still have?

Many thanks, Lin :-)

63 Replies

I use Toppik hair fibres to cover my thin parts , I've got a puffer applicator to apply it and it does the job (got thin hair due to thyroid problem but have just started mtx so who knows whats going to happen 😆)

Linysaurous profile image
Linysaurous in reply to Marionfromhappydays

Fabulous Marion, I shall certainly have a look into this, thank you. It sounds like you are living in uncertain times when it comes to MTX. It took six months to kick in for me although I have RA so hopefully it works more quickly for you x

Hessie5 profile image
Hessie5

Hi Lin - when I was diagnosed 2016 now - the rather heartless Doctor exclaimed:” you have RA and yes you are going to need to take medication where you loose your hair”. So cold.....

Now initially I did - but what immensely helped me was Collagen and MSM... Do run it by your Doctors though.... I am sure others shall add to what helped them.

All the best - Hessie 😌

Linysaurous profile image
Linysaurous in reply to Hessie5

Ouch, that was a bit harsh, Hessie5.

Ah, I have considered collagen but thought I would ask all the experienced people on here first. I've never heard of MSM before, so thank you...another one to add to my list of things to try :-)

Hessie5 profile image
Hessie5 in reply to Linysaurous

Oops sorry for typo in original post! Document was suppose to read Doctor The correct tool swapped it out....😬

MSM is a sulfur it's natural in our body - helps treat joint inflammation some say hair loss too. Let your Rheumy know - mine has a list...

Best - Hessie 😌

Linysaurous profile image
Linysaurous in reply to Hessie5

That's interesting, during my first ever visit with my Rheumy he told me if I didn't need a prescription for something there were no contraindications with MTX .....but maybe you have a different prescription xx

Hessie5 profile image
Hessie5 in reply to Linysaurous

Oh that's interesting and good to know - I usually research then tell my rheumy, if i’m honest not all the time. Just need to cover myself when posting and recommending.

Rashford20 profile image
Rashford20

Biotin, zinc

That’s how I get my lucious locks you see in the photo.

Linysaurous profile image
Linysaurous in reply to Rashford20

Amazing Rashford, you do look kind of familiar - have we met before???

Thank you for the suggestions x

allanah profile image
allanah

I lost some but came back quickly xx

Linysaurous profile image
Linysaurous in reply to allanah

Yes, I was losing hair from March for a few months then it started to grow back evidenced by the short tufty clumps that started to become apparent , but I notice more have recently started to fall out again. Maybe that's the way I will roll xx

allanah profile image
allanah in reply to Linysaurous

Hope so. Xx I did use thickening shampoo too

Linysaurous profile image
Linysaurous in reply to allanah

Oh what shampoo did you use Allanah?

allanah profile image
allanah in reply to Linysaurous

I used Plantur at first but you can go stronger and use minoxidil shampoos later on. Chemist will keep you right x

Dobcross1 profile image
Dobcross1

Hi I take collagen powder and a high strength biotin tablet and hair loss reduced to almost nothing (am on max 25mg metoject). Hope this helps, good luck!

Linysaurous profile image
Linysaurous in reply to Dobcross1

Excellent, thank you Dobcross1 xx

Brychni profile image
Brychni in reply to Dobcross1

How high is high dose?

Dobcross1 profile image
Dobcross1 in reply to Brychni

2 x 5000mcg tabs per day.

Brychni profile image
Brychni in reply to Dobcross1

If the biotin? X

Dobcross1 profile image
Dobcross1 in reply to Brychni

Sorry yes, Biotin tablets, 2 x 5000mcg.

Brychni profile image
Brychni in reply to Dobcross1

thanks - I have some from Bulk Powders called Radiance - they contain

hyaluronic acid - dry eye

selenium - can't remember, migraines I think!

Biotin for hair 5000

Among other ingredients. I spent ages finding the most comprehensive and cheapest and these ticked all the boxes.

Do you think I should add to that? I don't think I should take 2 a day, instructions say just 1.

Dobcross1 profile image
Dobcross1 in reply to Brychni

They sound really good and pretty comprehensive - I wouldn't think you'd need to add to that....

Marine collagen powder and high dose biotin definitely worked for me. Added bonus stronger nails and helped with dry skin.

Linysaurous profile image
Linysaurous in reply to

Ah, collagen seems to be one of the favourites, thank you J1707. I would also welcome the bonus of strong nails, mine are shocking! xx

in reply to Linysaurous

Fall out was a big problem. I get nothing now 😁x

Robin0 profile image
Robin0 in reply to

What brand do you use and where do you get it please? Mine is definitely thinning.

in reply to Robin0

I choose wild cold water marine collagen powder. ( not tablet) I’ve use a few brands ( on offer etc)I have used a biotin spray supplement but I can’t get it at the moment so use Swiss biogenics

Robin0 profile image
Robin0 in reply to

Thank you - I will check it out😊

LJRT profile image
LJRT

I currently use Methotrexate and have suffered hair thinning and loss, my hair dresser recommended nioxin shampoo and conditioner, i have noticed a difference since using this but still trying it out xxx

Diamondpainting profile image
Diamondpainting

Hi Linysaurous! I first started on MTX 6 years ago and one of the side effects was hair loss. My Rheumy added 5mg of folic acid to be taken 6/7 days (7th day MTX) this stopped the hair loss completely. If you are not aleady on folic acid (I call it follicle acid lol) it might be worth a try. Good luck! x

Linysaurous profile image
Linysaurous in reply to Diamondpainting

Thank you Diamondpainting, but I'm already on the folic acid 6 days a week x

Egpa profile image
Egpa

Has any one else noticed that on mtx there hair is going curly. Mine has gone from being really straight to a real flicked up curl. I always wanted curly hair. My hairdresser noticed it last year but since I have gone to 25mg it's got really curly.

Happy5 profile image
Happy5 in reply to Egpa

Mine went through a phase of that at the front where my hair is straight,

when in humid conditions :)

Egpa profile image
Egpa in reply to Happy5

Mine is there all the time, even get more in the wet weather. It's mad.

in reply to Egpa

Yes I use to have very silky straight hair now courser and has a kink. My hairdresser said it’s like regrowth after chemo

Dobcross1 profile image
Dobcross1 in reply to Egpa

Yes! And even more frizzy than it was before! I spend so much money on frizz fighting straightening creams and oils etc... then I go out in the damp air and puffff🤣😂

in reply to Dobcross1

Yeah it happens to me 😂😂

nomoreheels profile image
nomoreheels in reply to Egpa

My hair had been straight for 48 years & is really curly now, needs no styling at all. I just use Tresemmé Botanique curl conditioning mousse to keep it soft. I've been on MTX 11 years.

Happy5 profile image
Happy5

Hello m'dear

Actually when I first developed RA great clumps of hair came out from my scalp each hair wash.

My hair is thinner though hair dressers tell me I have loads of hair hmmm

Apart from using volume type shampoo etc I do my last hair rinse with cold water,

getting the water to go colder and colder from the usual warm water.

Apparently it's something used to treat ones with hair loss from cancer.

Got a hair dresser appt today so least what Barnet I have will look its best ;)

Linysaurous profile image
Linysaurous in reply to Happy5

Ah, we need a pic of your new hair do :-)

Does the cold water work, it makes me shiver just thinking about it!

Happy5 profile image
Happy5 in reply to Linysaurous

From my limited knowledge of hair follicles etc it does close the hair cuticles and pores on the scalp and therefore reduces the amount of medication to your hair.

That's the rational offered when dealing with hair loss during cancer treatment.

I started doing the last rinse in cold water when in Malaysia mostly to cool myself off, it seems to jury is out on whether it works or not.

As I said before more hair was falling out before I started my RA treatment.

:)

Linysaurous profile image
Linysaurous in reply to Happy5

That’s interesting Happy5, Thank you. It seems to me some treatments work for some people and not others so everything is worth a try X

Nuttyshirlz profile image
Nuttyshirlz

Hi I also did a post with the same question couple of years ago. It does stop I swear by Philip Kingsley it’s made a great difference to my hair. Qvc is where you find it. It’s expensive but it lasts forever. My hairdresser even says it’s made a difference and I’m not alone on here to recommend it.

Empress30 profile image
Empress30 in reply to Nuttyshirlz

I didn't find it on QVC but I googled it. ( Philip Kingsley)

Nuttyshirlz profile image
Nuttyshirlz in reply to Empress30

It’s definitely on QVC I’ve just got an order today. I’ve being using few years. But as I said I was also concerned about it. I do take folic acid 6 days a week. You can also get from eBay too.

Empress30 profile image
Empress30 in reply to Nuttyshirlz

I will try that. Which one do you use?

Linysaurous profile image
Linysaurous in reply to Nuttyshirlz

Thanks Nuttyshirlz x

vrowle profile image
vrowle

My hair has fallen out completely on mtx. Eyebrows and lashes too!

Linysaurous profile image
Linysaurous in reply to vrowle

Oh no, I'm so sorry to hear this...I do hope you find the remedy that works for you soon xx

springcross profile image
springcross in reply to vrowle

Oooh ouch! I hope it grows back for you. x

Happy5 profile image
Happy5 in reply to vrowle

Oh dear just shows how treatment interacts individually with us all.

Are you on a high dose?

Does your RA team have any suggestions ?

Sheila_G profile image
Sheila_G

My hair is thin. Like Marion I have thyroid problem as well as mxt but not sure which one or which drug causes it.

2bichons profile image
2bichons

Hi Linysaurous so glad you asked this question! I too am a new MTX user for RA and am hearing all the horror stories of hair loss, so I am loving all these informative replies. good luck to all of us oxoxox

Linysaurous profile image
Linysaurous in reply to 2bichons

I love how everyone is so helpful and friendly too, it's definitely the place to come some sharing and caring xx

Swimming20 profile image
Swimming20

I had hair loss when l was on Methotrexate...My Rheumatoid nurse took me of it and put me on sulferazine and now on a biologic Injections..l feel quite well on them ..hope you get sorted x

Linysaurous profile image
Linysaurous in reply to Swimming20

Thank you Swimming20 xx

springcross profile image
springcross in reply to Swimming20

Did your hair loss recover?

Linysaurous profile image
Linysaurous in reply to springcross

It seemed to be but then just recently more is falling out again when I wash and brush it. The good news is I don’t need to defuzz other areas of my bod so often 😁

springcross profile image
springcross in reply to Linysaurous

😊

springcross profile image
springcross

I lost loads of hair after MTX was increased from 15 - 20 mg and it showed badly. My rheumy doc decreased it back down to 15 mg and added SSZ which I eventually stopped taking. I've been taking FA 5 mg six days a week since diagnosis. I started taking biotin and marine collagen powder and it is growing back slightly but it's still early days. Good luck with yours. x

Linysaurous profile image
Linysaurous

Thank you Springcross x

nomoreheels profile image
nomoreheels

Hiya Lin. It is common I’m afraid, due to how MTX works for RD, by stopping cells growing, not just the ones that result in inflammation but those we need. I had some thinning in the early days & have a little more hair in my brush if I have an increase in dose, even after 11 years on MTX, but it soon settles. My hairdresser noticed but nobody else did. She changed my cut & it made quite a difference, going shorter helped too as I needed less product & less styling, so not so much work on the hair meant less was in my brush.

Lots of good hints given, I hope sone helps you as we’re defined by our hair aren't we? My hair was always fine & ramrod straight except for a slight kink above the nape of my neck. Nowadays it's proper curly! My hairdresser's thought was being on MTX that the follicles have been damaged, as she's seen it in cancer patients.

Linysaurous profile image
Linysaurous in reply to nomoreheels

Thank you for your support nomoreheels, there are mainly positive responses on here so it’s great to stay hopeful.

Ooh curly hair, maybe my childhood wish for ringlets will come true after all 😄

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