Sores from taking methotrexate

[Jenniferjuniper]

Hi, does anybody have any problems with sores on their face from taking methotrexate?

[Hidden]

No I haven’t experienced that and I’ve been on it 3 1/2 years. It’s not a side effect I know of best go to your GP

[Jenniferjuniper in reply to Hidden]

Thank you, will go to the GP, will post on here if it is methotrexate, have a good weekend!

[AgedCrone]

Took it for 7 years...no sores anywhere. Only odd effect was a metallic taste in my mouth...so I became addicted to mint sweets!

[Jenniferjuniper in reply to AgedCrone]

Thanks for that, yes I get a metallic taste also, have a good weekend!

[LesBev]

Hi. I tried Mx twice and both times got ulcers and blue/purple pigmentation changes in my mouth and in an intimate area.

My RA nurses said to stop the drug immediately. I don’t know what your sores look like but I would advise you to ask the professionals for help. It’s not the only drug they can prescribe.

Good luck. Lx

[Matilda_1922]

I suffer from mouth ulcers with methotrexate which is more common. Maybe you should seek GP for advice.

[Jenniferjuniper in reply to Matilda_1922]

Thanks for the reply Matilda will get doctors advice. Sorry to hear you suffer with mouth ulcers, they are nasty little things aren't they...

[nomoreheels]

Hiya Jenniferjuniper, welcome. What dose of folic acid are you taking? You may know but MTX, in the way it works on cells to help our RD, can't determine which good things we need so it may be a folate problem, often helped by increasing the amount of folic acid we replenish. How much were you asked to take? If it's less that 5mg 6 days a week it may help if your Rheumy increases it. Do ask.

[Jenniferjuniper in reply to nomoreheels]

Hi nomoreheels .......great name but the way, thanks for that, I am on 6x5mg a week but will ask my Rheumy after i have seen my GP.

[nomoreheels in reply to Jenniferjuniper]

Yours too... but do you ride a dappled mare with lilacs in your hair?! 😊Lovely song, takes me back. Ok, so you're on max dose folic acid. It's definitely something to talk to your Rheumy about, see what he suggests. Have you been on MTX long?

[Jenniferjuniper]

I certainly do, but swap the dappled mare with a clapped out bike.......

I have been on MTX , you?

[nomoreheels in reply to Jenniferjuniper]

Haha! Yes, I've been on MTX 10 years. How long for you?

[Jenniferjuniper in reply to nomoreheels]

Sorry, forgot to put that....doh! I think it was 2004/2005

[nomoreheels in reply to Jenniferjuniper]

That's a good while. So, how recently did the sores appear? Have you had a dose increase in your MTX recently by any chance?

[Jenniferjuniper]

Hi, I've had them quite a few months now, they are like little peeling places, rather than sores really. I have just started putting tea tree oil on them and it seems to be making a difference. I think I will start to take one less mtx a week and see if that improves them. Thank you for asking ☺- have a good day!

[nomoreheels in reply to Jenniferjuniper]

Sorry for not replying sooner Jennifer, with the reply not being under mine I didn’t get an alert & only just logged on. I wonder if like me you have mild eczema patches? I have a tendency to get stress eczema (when stressed, 🙄) but do find that when it gets colder & windy I get small patches at the bottom of my cheek, in a line with my mouth. I have a prescribed topical cream I use sparingly if they persist. I do use a daily tea tree oil facial wash which has really helped with any breakouts, haven't had a spot in years. I also use tea tree oil but not neat on my face.

I'd just run it by your rheumy nurse, see if she thinks reducing your MTX may be helpful, just so they know if your bloods take a downward turn. 😉

[Jenniferjuniper in reply to nomoreheels]

Thanks for that, that was really helpful, I might try a daily tea tree oil wash........but I hate the smell of it! 😵will just have to splash more Eternity on 😂 I do sometimes miss a week on my mtx, if I go on holiday for instance, so I'm able to have a few wines.....naughty I know but it doesn't seem to affect my bloods, but I will tell my Rheumy nurse if I decide to take one less a week.

[nomoreheels in reply to Jenniferjuniper]

👍 You're welcome. I hope it helps you too but still do mention it to your team if they persist.

[Jenniferjuniper in reply to nomoreheels]

Thanks, will do!