New prescription: Hi all you lovely people. Hope today... - NRAS

NRAS
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New prescription

Sumdy
Sumdy
33 Replies

Hi all you lovely people. Hope today is being a good one.

I'm just back from my rheumy appointment with the consultant (last month was the nurse who increased my methotrexate to 20mg) and he's added sulphasalazine, building up to 2000 over 4 weeks and hydroxychloroquine 400. Fingers crossed these will do the trick added to the methotrexate. On my way home I popped in to the GP to hand in the instructions from the hospital and the receptionist, who is very experienced, was surprised when I pointed out that these were in addition to my methotrexate and not instead of. Any thoughts?

33 Replies
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J1707

A lot of people have a cocktail of two or three drugs and I know many people on her have the same cocktail of drugs.Methotrexate is the first drug then usually other drugs are added. Nothing to worry about

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Sumdy
Sumdy
in reply to J1707

Thank you J1707 x

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YanniBaci

Those 3 medicines are a standard mix of DMARDs for RA - here it’s called triple therapy, designed to knock RA on the head quickly :)

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Sumdy
Sumdy
in reply to YanniBaci

Thank you YanniBaci

Fingers crossed x

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sunnyweek

I've had all those together at the maximum they are a common cocktail. I hope they work well for you.

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Sumdy
Sumdy
in reply to sunnyweek

Thank you sunnyweek. I so hope so x

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helixhelix

Yup, common cocktail. I did very well on it for 8 years. I don’t think the receptionist is as experienced as she thinks she is - and shouldn’t be commenting on drugs anyway!

6 likes
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Sumdy
Sumdy
in reply to helixhelix

Thank you Helix. I agree and fingers and everything else crossed that this combination will as YanniBacci said knock this horrible disease on its head x

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Otto11

Hi. Yes when I first diagnosed I was on Methotrexate plus Sulphasalazine then Hydroxychloroquine added later. When these failed I moved onto Biologics. I think it’s pretty much standard course of treatment. Good luck.

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Sumdy
Sumdy
in reply to Otto11

Thank you 🙂

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sylvi

Its nothing to do with her she is the receptionist not a dr experience or not. I haven't read the other posts so I don't know what has been said, this is just my opinion. xxxx

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Sumdy
Sumdy
in reply to sylvi

Thank you sylvi x

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Bookworm55

At a medicines review with my GP he did seem surprised that I was on two DMARDS . Not sure how unusual that is but assumed double or triple therapy has fairly recently been used by rheumatologists (and, from what I’ve read, has a greater success rate in many cases.)

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Sumdy
Sumdy
in reply to Bookworm55

Yes Bookworm55. Thank you. I'm thinking I'll be getting a call from the GP surgery pharmacist next week querying things as usual and holding up the prescription. A relatively new job in our surgery and one which I'm not sure we need. Fingers and everything else crossed that the cocktail works some magic. Hope you're doing good 🙂

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AgedCrone
AgedCrone
in reply to Sumdy

It’s a really good idea to have a prescribing pharmacist in a GP practice. When I had shingles I was prescribed all the normal anti viral drugs-but was the pharmacist who pointed out that I had to stop taking one of the regular drugs I was taking until I had finished the shingles drugs. I didn’t ask what would have happened...... but I’m glad I was told .

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Sumdy
Sumdy
in reply to AgedCrone

Yes I agree AC but as with all things a lot depends on how good they are at their job. Ours is very nice and I'm sure he's doing his best so I'll say no more.....🙂

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AgedCrone

If I were you ...until GP receptionists are clinically trained I wouldn’t discuss your RD medication with them,,,,the majority are kind caring people, but most GPs don’t understand RD drugs ...let alone the receptionist.

The three drugs you mentioned are regularly prescribed together....& seem to work well. Hope they work for you.

When I was on Leflunomide one of the GPs in the practice asked me what I was taking it for ...I stick to asking my rheumy nurse now.......she might know nothing about the plague...but she’s right on top of RD drugs.

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Sumdy
Sumdy
in reply to AgedCrone

Lol! Thank you AC. And again I agree wholeheartedly. But I didn't discuss the new meds. I was just handing in the note from the consultant with the new instructions. The receptionist made her remark after I asked for my repeat methotrexate. She thought the two new meds were replacing the methotrexate rather than being added. It highlights the fact which I've quite often thought that you need to be on the ball yourself. Have a good weekend AC 🙂

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Grayling

Hi mate I'm crossing my fingers for you in hope the new script works for you. You wont want to know this cocktail did not work for me, but we are all different. Good luck to you

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Sumdy
Sumdy
in reply to Grayling

Thank you Grayling. I hope you've since found something that does work for you. It's so important for quality of life that there are meds out there that doctors can prescribe to give us the relief we need. Unfortunately, from the posts on here there are a lot of poor souls not getting it. Have a good one 🙂

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Pulfs

I've been on hydrochloquine and methotrexate combined for over 20yrs ,receptionist should comment on medical matters. Hope they work for you xx

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Sumdy
Sumdy
in reply to Pulfs

Thank you Pulfs. Hope you're doing ok 🙂

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Pulfs
Pulfs
in reply to Sumdy

Yes doing ok,got rheummy appointment next month to set up my next retuximab infusions which I've been having for last 7yrs every 6mths.x

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Sumdy
Sumdy
in reply to Pulfs

👍x

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weymouth321

Yes, prescribed all these 3 - on day of diagnosis 10 years ago for ra

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Sumdy
Sumdy
in reply to weymouth321

You have a good rheumy weymouth321. Obviously willing to hit this thing hard right at the start when it most matters. Thank you. Have a good weekend 🙂

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SLEepyhead123

I couldn't tolerate sulphasalazine or dolquine (cheap Spanish equivalent to plaquinel) got to the stage where l couldn't leave the house! Had to be within 50 metres of a loo at all times. Was actually told off by dermatologist who told me no one had ever told him they had problems! Google dolquine.... loads can't tolerate it!!

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Sumdy
Sumdy
in reply to SLEepyhead123

👍

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Hobbledehoy

The Receptionist?? Only the Pharmacist or a Doctor is entitled question/advise on medication...

Best wishes.

1 like
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Sumdy
Sumdy
in reply to Hobbledehoy

I know but I think she meant well. If she takes it on board, she's learnt something 🙂

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dembonesDAMNBONES

I tend to agree with those who clearly know it is not a receptionist's business to query on medication prescribed by a qualified practitioner...unless they know a combination to be dangerous.

The only problem I ever experienced on that matter was actually with a dietician, but I promptly set the record straight with her, above her protestation.

I asked her to either walk the few yards to my GP's surgery or phone him.

She phoned and my prescription stayed as the GP prescribed it.

I've only ever had to have words with the receptionists once with regards to the duration of an appointment and I made it clear under no circumstances would I discuss any medical condition with someone professionally unqualified, much less in front of a waiting room full of patients. :)

I never raised my voice or became rude on either occasion, as their jobs can be stressful.

Quiet but firm does the trick.

Nowadays, as I understand, the general practice with receptionists is to ask if you'd like a single or double appointment.

Anyway, I hope your combo is successful!

Be sure to let us know.

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Sumdy

Thank you and will do. Our surgery has recently changed how you book appts. etc. and you now have to go online and outline your problem. Say what you want from your doctor and someone will get back to you. I'm pretty sure it won't just be medical professionals who deal with it but I suppose that's the nature of their job. Hope you are doing ok dD 🙂

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dembonesDAMNBONES

The online part sounds good, if you can manage with sausage fingers, or blown up Marigold hands, during a flare. Lol.

I've been flaring for a few weeks now, but see the nurse on Wed, so I'll get some relief within a week or two...or the address of the nearest knackers yard. ;)

I was on the Sulf for a few years, but it lost it's efficacy and causes more probs than it's worth and I 'm going down the Mtx route now.

Should be a giggle, I imagine. :(

How're you getting on with your cocktail, any better or too soon to tell?

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