Bad day

[Asheen]

Having a bad day 😢 feeling depressed, tearful.

Really need some positive thoughts but where are they?

[helixhelix]

Try a few minutes looking at the live feed from stonehenge and try to imagine you are sitting there in the sunshine, with just birdsong and quietness around you, smelling fresh grass and feeling warm and comfortable.

stonehengeskyscape.co.uk

[Asheen in reply to helixhelix]

That is beautiful & calming...thank you xx

[charisma]

Hi Asheen

Sorry to hear that, happens to us all but sometimes it’s a side effect of meds.

If it hits for no apparent reason maybe it is worth seeing your GP or calling Rheumatology.

Can you make the effort to do something that will engage your concentration? This usually helps me as it stops me dwelling on the low mood meantime.

I am heading out now to try a walk in lovely scenery, with benches where rest is possible.

May you find a way through today!

[Asheen in reply to charisma]

Thank you 💞

[Hidden]

I know I know how you feel when takes hold it grips hard. But it will end. Just had a bad few weeks but woke up this morning pain free no fatigue no stiffness 😁😁😁😁😁😁😁take what I get so happy today your turn next . Have a me day binge watch tv sit in the sun order a takeaway do sod all x

[Asheen in reply to Hidden]

Thank you so much ...I’ll do my best to lift out the doldrums x

[PinkLamb]

Hi Asheen,

Sorry that you are having a bad time!!

It's horrible when you feel this way, we all go through this now and again, the good thing is that this is a wonderful forum, each and everyone of us understands what we are going, and we are all here for each other to share advice and caring kind words,

When I feel this way, I always come to the forum family, and I feel much better!!

Remember you are not alone,

Hope that you feel better soon.

Hugs x

[Asheen]

Thank you for your kind words Pinklamb x know I'm not suffering alone does help.

Onwards & upwards as they say ...just need to start moving “up”

[Hidden]

Sorry to hear you’re having a bad day Asheen. We all know that feeling but I’m glad you feel you can talk to people on here when you are feeling like that. Post as much as you want to there’s no judgement here. As others have said is there something nice you can do? Something just for you that you will enjoy? I hope you have a better day tomorrow x

[Asheen in reply to Hidden]

Thank you xx

It’s so good to have you guys here, you know exactly what RA is about & how it makes us all feel. 💞

[BUDGIEBURDEKIN]

Hi Asheen. You sound like your in a dark place at the moment , the pain takes everything away from us and we are all in this together, tomorrow is another day and with any luck the Sun will be shining upon us all and maybe a short stroll to your nearest PUB, when your there give me a shout and I shall mount my flying carpet which I got from Aladdin, by post lol air mail.

We go through hell every single day but it’s still ok to smile now and then and chatting to us all, we are here for you as is you for us.

Philip x

[Asheen in reply to BUDGIEBURDEKIN]

Philip your words speak volumes as do our other sufferers!

It’s so reassuring that there are peeps who knows the pain of R.A.

Thank you for your reply 😊

[Ruth12345]

Yes yes. I agree with everything said so nothing to add but just wanted to say I get it and we are all here for you. Take care. I look forward to hearing from you. 🙂🙂🙂

[Asheen in reply to Ruth12345]

Morning Ruth... thank you for getting in touch. We have a great people’s connection on here, being able to have a moan, discussions, information!!!

We are not alone .... such a nice feeling!!! 😊 xx

[Ruth12345 in reply to Asheen]

I so agree. Enjoy your day as you are able. X

[Asheen in reply to Ruth12345]

You too ... I don’t have the black hole feeling today 😁 x

[ramkya]

Hai,

Though l don't have as much pain as many here l have chronic sinusitis & rensl stones and when pain hits, you hate the world & feel so desperate, helpless & low as hell. My background in Pharmaceutical for 30 years & knowing what's happening is awful scary! Though on medication, my problems are long-term & lve learned to live with the pain.

I deal with it by lying down curled up does relieve pain sometimes. If that does not help watch TV with low volume. What helps most is when l lie down, take deep breaths and think of happiest times in childhood. Jumping into the village pond with friends, climbing up mango trees, any tree.. swimming in the irrigation dams, hide & seek with boys & girls, pranks in schools & college, songs l used to play with college bands, long long bicycle bike rides & motor bike rides through twisting roads....stuff like that. Though lm happily married with grown up children, my childhood memories work best for me, they are stronger than the pain & makes me drift above them.

I know it can be different for different people, but worth a try, l'm with you on the pain part! But.. Please keep punching on, this too will pass. There's some purpose to everyone of our lives, lm not here to curl up & die is what l think, lm gonna lick you Pain is what l say to myself.... & want you to do so!

Best,

--Ramky

[Asheen in reply to ramkya]

I love your positivity & admire your determination.

I have had R.A. for 18 months & my problem is I can’t get my head around how much it’s changed my outlook on life, the way I look (older than before) the things I did in a second now seem to take half a day. I had such a young view on life, now I just feel my years.

Thank you for taking the time to reply 😊

[Troygirl]

Good Morning Asheen!

As I sit here reading everyone's posts while waiting for my morning dose (10mg) of prednisone to kick in I know what you mean! (was as high as 25 for 4 straight months)!

Everyday seems to be a very bad day for me too! The past 7 MONTHS, everyday has been a bad day & it seems I just want to throw in the towel!

When will the pain end?

When will the need for Prednisone End?

When will the right RA medication be found for me?

Waiting for the correct RA medication to work so I can STOP all this prednisone poison I HAVE to take to just be able to move my shoulders & wrists & get to work is getting so frustrating!

How can someone be in pain with one continuous endless flare for 7 freaking months?

My RA doctor says "Be Patient". Be Patient? He is not the one waking up every single day not being able to lift shoulders let alone turn on a faucet to make a cup of coffee!

He tells me to increase my prednisone back up to 25 per day even though he knows all this predenisone has now giving me serious side effects and I now have Cushing Goid! The goal is to DECREASE prednisone not INCREASE it again!!

The Prednisone poisoning was so bad that my GP (he took care of me for the past 30 years and know me like the back of his hand) had to call my RA dr to tell him he really needs to start a reduction program on the prednisone! Now that's pretty bad!!! The RA doctor never even considered that all the prednisone he was prescribing me was actually hurting me more than the RA diagnosis!

My once healthy long hair is now like hay and is brittle & breaking off at my shoulders, I have so much fluid build up & shortness of breath, my GP (not the RA dr) has me taking Lasix! I gained 20 lbs (very petite & that is ALOT for my small frame) in 7 months & all my work clothes make me look like I am stuffed in sausage casing, I have the dreaded moon face (very depressing having look in the mirror every day) And on top of all that I have leg cramping at night time that is so bad I have to jump out of bed & put my legs in the tub & run hot water over them.

If the latest RA dr treatment of IV infusion Acterma does not work (been on countless other medications so far...remember I was told "Be Patient") I think it may be time for new RA Doctor. I simply CANNOT remain on Prednisone of any dose for any more length of time! The Prednisone is doing WAY more damage to me than any RA condition! I am a mess from the Prednisone!!!

Still I fight on!

I will not let this terrible disease get the best of me!

Many days, I just want to call in sick, stay in bed & cry!

But I will not! I push on! Drag myself out of bed, take the poison prednisone, wait for it to start taking the edge off & get my butt to work!

I have not missed one day of work during this 7 month. Many days I still have a hard time writing and it looks like scribbling!

Thank goodness for keyboards! lol!

If I can get through each day for the past 7 months, I am hoping you can push through too!

It sucks so bad right now & all we can do is have hope that it will get better.

It has to...right?

Asheen, We CAN do this! One day at a time is all we can do!

Also, remember we must fight & speak up with these RA doctors as well!

It is our bodies & our life!

[Asheen in reply to Troygirl]

Your name matches your spirit girl...Troygirl. 😊

I know we are all in this boat together, like you I will not sink & I know there are peeps with this dreadful disease that are suffering more than me but at least we can bitch & moan together!!

Keep up the fight everybody xx

[RAGurl1]

I've been reading about using music to heal, including immune system. I had a YouTube fest last night with Meatloaf, Pentatonix, Michael Jackson, Celtic Thumber, Baby Metal, Gangnam Style, Weird Al and many others. My pain level had almost been out of control for days, but last night and this morning, my pain is actually manageable. Maybe that might help you too?

[Asheen]

Oh love music... all genre... trouble is I want to dance to the upbeat tunes 😄

Thank you for your ideas 😊

[Pulfs]

Was feeling a bit down myself so phoned a friend and went out for coffee and chat

I find friends are a god send to me

Hope you feel better soon xx

[Asheen in reply to Pulfs]

Thank you, yes today has been a better day.

😊 x

[Pulfs in reply to Asheen]

That's good to hear . It's hard to keep smiling somedays when in pain xx

[Fifi2]

Oh Asheen I feel your pain

Just try to remember that everything in life is temporary, with the correct drugs you will get there .

There was a time when I was off work and couldn’t lift a cup of tea without it hurting .

Couldn’t really dress myself properly so I went braless for weeks ....now that was liberating !

You will get there ....one day at a time .......

Sending hugs 🤗

[Asheen in reply to Fifi2]

Thank you, xoxox

[Bizzie]

So sorry Asheen. It's awful when it hits you like that. I hope the suggestions on here and knowing people care is helping you a little.

[Asheen in reply to Bizzie]

Thank you Bizzie... feeling better today thank you.

I was awake really early (earlier than usual) & saw a lovely sunrise 🌅 that lifted my spirits 😊

Hope you have good day x

[Tintoy43_]

Praying for you. 🌈