Half the story, by the Daily Mail: Well at least they... - NRAS

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Half the story, by the Daily Mail

MissMinto profile image
11 Replies

Well at least they tried, but they also got a lot wrong in this story in today's Daily Mail.

Apart from the errors, omissions and silly mistakes such as using a photograph of capsules when they're talking about a drug that is injected (Humira) in a story about money-saving biosimilars, I can't help feel that we're being slightly demonised for being such 'expensive' patients...or maybe I'm just feeling a bit touchy today.

dailymail.co.uk/health/arti...

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MissMinto profile image
MissMinto
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11 Replies

Thanks for link, know exactly what you mean about feeling demonised, partly to do with media insistence on classifying it as ‘arthritis’ not the serious systemic auto immune disease it is I think. x

Nessa28 profile image
Nessa28 in reply to

I know one of the gps at my surgery feels it's time for everyone to be on bio similar and whilst I agree without the Humeria I had no quality of life More tablets than I care to think about . Surely with all medication comes a contra indication so we as patients must if we look at that be costing less if medicated accordingly . I agree that it's a condition that's brushed under the carpet and as we know it's also a condition that loves to give . So heads up all of us we are so worth it .

in reply to Nessa28

Agree & Yes we are nessa! 😊 my gps kept pushing better meds too when I was miserable on dmards, bless em. Now on benepali which is a biosimilar too & so much better on side effects. They are all expensive but then so would be numerous joint replacements I guess & we have all paid contributions all our lives (45 years worth for me). NHS original mantra was ‘from cradle to grave’ & the general demonisation in the press of anything seen as associated with an ‘ageing population’ annoys me too, rant over lol! X

Nessa28 profile image
Nessa28 in reply to

Bless you that's exactly how I feel . Xx

in reply to Nessa28

😀😉

Shalf profile image
Shalf

Not touchy Missminto just a realist! So what the cost! Health over money is what I say! X

Mmrr profile image
Mmrr in reply to Shalf

Shalf, I think it's a case of when you spend the money on people with RD not on how much is spent ? But one way or another money is often spent.

Up front early appropriate medication , maybe biologics , and save later on investigations, referrals, expensive surgery, welfare payments and the state keeps collecting tax and NI payments if people are well enough to work. It's a no brainer, but no government will fund the up front treatments.

PS here’s a link from behind the headlines that says they’re supposed to consult with patient before swapping your humira, hope it’s a help for anyone on it & worried x

nhs.uk/conditions/biologica...

Nessa28 profile image
Nessa28 in reply to

Lol

HappykindaGal profile image
HappykindaGal

I’ve just read this and don’t see that it’s demonising anyone. Just says patent expired so meds can be produced on the open market. To be honest, I’m all for that for two reasons, one that perhaps people will get it earlier rather than going through a couple of years of trying ineffective drugs and secondly, there’s money that can be used elsewhere. Win win all round.

Bully915 profile image
Bully915

Totally agree with you after all none of asked for this nadty disease .makes you wonder if the table was turned how they would act

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