New Cimzea Patient: Hi I’m angelmar and I’m new to this... - NRAS

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New Cimzea Patient

9 Replies

Hi I’m angelmar and I’m new to this site, I’ve had RA for 20yrs and been on lots of medications, including, biological therapy’s and DAMARDS, and still have very active RA. I have just started on Cimzea and was wondering has anybody out there had much success with this drug? please reply.

9 Replies
Scottishlad profile image
Scottishlad

It has worked well for me. I have been on it for about 3 years. My only comment is I found that in my case I had a slight reaction at the injection site when I injected in my thighs. This is due the injection ending up in the muscle rather than subcutaneous. I am quite slim and cycle a bit. My belly has some more fat so I can inject under the skin more easily.

in reply to Scottishlad

Hi, thanks for your reply, I'm keeping fingers crossed for this one 🤞as I've extinguished a long list of meds and therapies, and it's great to know it's worked for you, light at the end if the tunnel 🤗🤗

I was put on Cimzia in March 2018, having failed finally on Humira after 8 years. I’ve had 2 major flares, each taking months to resolve and for this current one I’m waiting for another fluoroscopy (again). Consultant and I are concluding Cimzia doesn’t work for me so infusion rituximab next. However, I’ve had no side effects at all and you may find Cimzia works well for you. I really hope so

stbernhard profile image
stbernhard

Hello Angel, I am on CIMZIA since 2013 and it has been the drug that finally enabled me to take back control of my life. Of course we are all different, but I hope it will work as well for you as it does for me. I am in remission since 2015. All the best.

in reply to stbernhard

Hi stbernard, thanks for taking time to reply, I must admit it’s all sounding promising so far 🤞🤞🤞good health to you.

hatshepsut profile image
hatshepsut

Hi Angel,I have been on cimzia/abatacept for just over 4 months. It is my fifth biologic. So far, touch wood, it has been good, and my CRP and ESR have gone down. I feel much better in myself. Just had a bit of a hiccup, hospitalised with a kidney infection, but back on it now, and hoping all will be good. Do hope you find the right treatment for you, I know how dispiriting it can be when one fails

in reply to hatshepsut

Hello Hatshepsut, thanks for the reply, we all seem to know where we coming from hanging on every drug we try hoping it’s gonna give us a better quality of life without the pain. Good your back on it! Take care.

bluetit33 profile image
bluetit33

hello AngelMar, just read your chat. I too have had r/a but for 30 years, I was on Cimzia inj. for 2yrs, and on the qwhole got on well with it, although I still had some r/a symptoms, not as much as when not on it. I sadly had to come off this as I developed a positive T.B count on it. and was suffering with a lot of chest infections. but I do think you have to give these meds a chance, as what works for one is not for all. so good luck

in reply to bluetit33

Thanks for that bluetit33, I hope I can continue on it for a while, I’ve only had my 1st dose of 400mg six days ago and can feel a difference already. Just started with a stuffy runny nose and can’t decide if it’s side effects or the onset of a cold. Hatshepsut has replied to my chat and told me he has the same side effect, think I can live with that! better than daily pain.

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