treatments: Hi My name is Don and I have RA .I was on... - NRAS

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donmounsteven profile image
18 Replies

Hi My name is Don and I have RA .I was on sulfasaiazine and hydroxychoroquine it did not work.I got a bad rash .I am going to start on methotrexate.I would like to hear about other peoples experience on this drug.

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donmounsteven profile image
donmounsteven
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18 Replies
Jarme profile image
Jarme

Donmounsteven-

I’ve been on Methotrexate for 5 years and haven’t had any problems! It has really helped me a lot! Best of luck!

donmounsteven profile image
donmounsteven in reply toJarme

HI Jarme Thank you for your input.

sciqueen profile image
sciqueen

Hi

If it works, it tend to work well for most peeps, me included, however it’s a hard drug to get use too. Mtx, is usually given in combination with other Damaris, as it seems to boost the other drug(s), effects.

Good luck in your Dardanelles journey

Joanne

donmounsteven profile image
donmounsteven in reply tosciqueen

Hi sciqueen thank you it is good to hear people that get good response to this drug. So many people have a hard time with it, I hope your jouney go's well good luck. thx Don

donmounsteven profile image
donmounsteven in reply todonmounsteven

HI How long did it take you to get use too Mtx? Thing were good after you got use to it. ?What other drug(s) are you doing hydroxychlorouine as well? How long have you been on it? Hope things are going good for you now. Don

Elswick profile image
Elswick

Hi I was on sulfasaiazin at first for 8 weeks really made me ill sick no appetite no mojo now been on methotrexate for 12 weeks pain better take folic acid this week hands swollen so on steroids for short period feeling better still off work hope you feel better soon horrible desiese this is but everyone assures me things get better I live in hope keep chin up 😎

donmounsteven profile image
donmounsteven

Hi Elswick I hope you feel better soon,all this drugs are no good,it is to bad we have to take them.It would be a nightmare with out them. Thank you Don

jan_lester profile image
jan_lester

Hi. I was on Sulfasalazine and Hydroxychloroquine. I was started on MTX in tablet form, and like many others, I felt really sick.

Many people have bad side effects with the tablets. I am now on MTX injections (Metoject) and, for me, this is a much better way of taking MTX. It goes straight into your system and so doesn't impact on the stomach. Far fewer side effects. Just a little bravery needed when you start self injecting.

Good luck!

Shelly1969 profile image
Shelly1969 in reply tojan_lester

Hi jan I’ve taken myself off mtx tablets it was making my hair fall out so much I’ve lost at least half the thickness and I had extremely sore skin and very loose stools over the last few months I’ve been on it since January and my RA nurse told me 3 weeks ago to stop and see how things go and if it all settles Down I’m Extremely Allergic to NSAIDs Any Sulphonamide Medication was you on the MTX tablets before having the injection form and if so does the injection give you any side effects as I’ve experienced on the tablet form 😔

Regards Shelly x

jan_lester profile image
jan_lester in reply toShelly1969

The injections have had only minor effects. The tablets made me really ill.

I think the dose is lower in the injections which is a bonus.

donmounsteven profile image
donmounsteven

Hi I will be doing the injection.Everyone says it is better.I will be starting MTX in a week.Have to get rid of rash from selfasalazine. Glad I have good people to talk to.Get back to you how thing go.Thank you I will stay brave. Don

donmounsteven profile image
donmounsteven in reply todonmounsteven

I took my second shot of mtx and everything is going good .have not had any side effects see what happens down the road hope everyone has a great day.

jane1976 profile image
jane1976

Hi, I had a rash when I was on sulfasalazine too. Been on lots of combinations of different drugs, methotrexate has always been included. I’m now on methotrexate, hydroxychloroquine, Naproxen & give myself weekly injections on Benepali, I’m better than I’ve ever been, guess I should be with all the meds!!

donmounsteven profile image
donmounsteven in reply tojane1976

Hi jane The rash is slowly going away,I am off every thing right now untill rash is gone.I hope I find the combination for me,it can take time some times, hope it not too long. then I will start mtx and hydroxy and sees what happens. thanh you Don

jane1976 profile image
jane1976 in reply todonmounsteven

That’s good about the rash. Hope you soon find medication that works for you.

donmounsteven profile image
donmounsteven

Hi Mario You have quit the combination of drugs . hope they are doing good for you.I to have OA and RA, i found out i had RA march, tried sulfa, hydroxychoruine and prednisone did not work .going on methotrexate,hydroxychoruine see what that will do .Thank you Don

suky6 profile image
suky6

Hi Don

I started 4 weeks ago on methotrexate and have been absolutely fine with it not a side effect at all. I'm still in pain as it does take 3 months for the drug to work, I also take hydroxychloroquine daily too. Like you I was a little worried about taking it as you always seem to get the negatives but I'm quite glad I have started on it and am willing to see how it goes for now. All the best.

donmounsteven profile image
donmounsteven in reply tosuky6

Hi suky6 Thank you for a positive outcome, it is good to hear some people have not to many side effect. do you take prednisone it helps my pain now .I am off sulfasalzineand and hydrozychloroquine. starting methotrxate in a week.I hope your pain subside substantially in the coming day. All the bet to you,thank you for your post it has lift my spirits and apprehensions. Don

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