MI?: Just received a very thorough 3 page report on my... - NRAS

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MI?

wishbone profile image
11 Replies

Just received a very thorough 3 page report on my current health situation from immunology. Most of my blood markers, readings, results or whatever the correct terminology is(?) go over my head and I'm not really bothered by that as most are ticked "normal". However, there is one thing that I would like to know...it's listed among my 8 diagnosis, and is wrote down as "Previous possible MI". I'm already aware of the other 7 health conditions but not this one.

Enlightenment much appreciated?

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wishbone profile image
wishbone
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11 Replies

Myocardial infarction?? Though I'd think you'd know about that!

Probably something really simple. Not a doc so don't know. Can you ask GP?

wishbone profile image
wishbone in reply to

Ah, right!...duh, I should have known as I had a myocardial infarction, aka - a common or garden heart attack years ago. :-)

Thanks Nettie

kbspots profile image
kbspots in reply towishbone

No you don't always know if you have a myocardial infarction. They are called silent MI's (myocardial infarction). You could have had one in your sleep or maybe had a twinge in your chest that you thought was nothing. Heart attack symptoms can be very different for women than men.

wishbone profile image
wishbone in reply tokbspots

I had an angiogram at the time but no issues were detected. Neither could the cardiologist offer an explanation as to what triggered the attack. This was some 12+ years ago. Three years ago my heart was closely scanned looking for signs of an infection. Thankfully no nasties were found. The radiologist said that if I hadn't told her I'd had a mild heart attack, which is what the cardiologist told me at the time, then she would never have known. Oddly, a doc scanned my heart shortly after the attack and said there was some scarring. When I asked the radiologist some 9 years later, she said there were no signs of scarring. Wonder if mild scarring can fade away after a number of years?

nomoreheels profile image
nomoreheels

As part of your raft of testing did you by any chance have an ECG Wishy? If so it could be that they've picked up that you had a silent heart attack, MI is Myocardial Infarction. An ECG can pick up the slightest of damage to the heart, it could be you don't need any treatment or further testing, though I'm sure they'll be on top of it if you do, & it does say possible. It's pretty common, it's said 50% of people can have one without knowing, they don't get the typical heart attack symptoms because it's so slight, it can even happen in your sleep. Of course we can also put down discomfort to our other aches & pains, a lot of the symptoms mirror ours & then we do tend to have higher pain thresholds than others who don't have RD. Also, if the didn't redo the ECG it could be a blip. I have an annual ECG & have had the first reading saying I'd had a heart attack but when repeated says I didn't.

wishbone profile image
wishbone in reply tonomoreheels

No ECG at immunology, but have had a few since I was told I'd had a mild Myocardial Infarction aka - mild heart attack many moons ago. :-) At least MI didn't turn out to be yet another blinkin' disease.

Thanks heelsy

My rheumy also recieved a copy of the report, so it's just a matter of waiting for her to call me in to get started on that baricitinib.

nomoreheels profile image
nomoreheels in reply towishbone

Maybe it came from your cholesterol, specifically your LDL, could be related, I would think they'll have taken that in your bloods. Do you take statins?

Well as you've received the report your Rheumy should too so I hope starting Wishy on BARI is top of her To Do list. 🤗

wishbone profile image
wishbone in reply tonomoreheels

I replied to myself by mistake...reply below.

wishbone profile image
wishbone

Yes, I take statins.

My rheumy did chase up the letter after 6 weeks, so it shouldn't be too long before I hear from her. I'm still seriously worried about going back on meds. What really concerns me is I haven't had a single UTI since I stopped taking meds some 20 months ago, hence it doesn't bode well for what will happen after I start taking meds. The immunologist did suggest that I should be carefully monitored and admitted to hospital and placed on IVA's at first signs of infection. He also tried to reassure me by saying that at least the hospital will be aware of my problem and start treatment straight away, which isn't necessarily the case with people who don't have a history of sepsis. All well and good for urosepsis I suppose, which does tend to show symptoms with me, but less so with septic arthritis which hit me like a bomb from the blue! :-(

I will go ahead and start the BARI (that's easier to pronounce) as I said to you in a recent post. Just wish I was a bit more optimistic about things rather than being the perpetual pessimist that I am.

nomoreheels profile image
nomoreheels in reply towishbone

It's totally understandable why you should feel pesimistic though, I would in your position. I hope they follow the Immunologist's advice & they'll monitor you closely & have plans in place should you need them, but I truly hope that JAK's are a different enough drug class that it doesn't follow previous experiences & of course that it brings control. Everything's crossed for you Wishy.

wishbone profile image
wishbone in reply tonomoreheels

I hope so to. If the JAKs weren't a different enough class of drug then I'd take my chances without meds.

Thanks heelsy

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