I'm Deborah. In December 2017 I was diagnosed with adult onset stills disease after being in hospital unwell and lots of investigations later. I was put on 40mg prednisolone. Due to my transferring my care to another hospital that is closer to work, I've been handling the weaning process off steroids myself.
To be clear the consultant gave me a guide of the doses in January .
I'm yet to see the new consultant but wondering whether anyone had any experiences tapering steroids. Im getting knee and wrist pain and knee swelling. As well as all the lovely Prednisolone sode effects; heartburn, weight gain, mood swings, very low mood at times etc. I'm Taking naproxen for the pain. Im also trying to go swimming regularly as I read its meant to help.
Any advice would be appreciated as I feel like I'm managing it by myself.